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Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 30
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A MyBCTeam Member

Fortunately my radiation oncologist has given me various handouts for the different types of radiation I've had which listed side effects I could have during radiation, shortly after radiation, and months to years after radiation is completed. Not all doctors are good about explaining what to expect from different treatments from side effects to what actually happens during a given treatment. I have learned to research everything regarding medications, procedures, etc. because you can't trust all doctors to give you an accurate description of what to expect during and after various treatments. If you educate yourself about your particular cancer(s), drugs, and treatments then you will have a good idea of what to expect and you will also know if you are not receiving adequate or correct medical treatments for your particular situation and will be able to intelligently advocate for yourself. Another thing to keep in mind is doctors are human and all humans make mistakes. If they don't give you information about a procedure then ask them to provide you with information and instructions. Don't ever be afraid to question your doctor or call them out on mistakes they make either. You're the patient and you have a right to know and understand everything that is going on with your medical treatments.

January 31
A MyBCTeam Member

Can you contact the nurse navigator, and see if they can round up any handouts, etc. that might cover this info for you? This is important because some of these side effects do not show up until months or even years later. It would be helpful to have this info so that should something show up- you can share the info as a possible cause to be checked out. Hugs!

January 31
A MyBCTeam Member

Mine gave me the risks including heart damage, lung Pneumonitis, secondary cancer, and the percentages. Plus skin and fatigue. Sorry your did not

January 31
MyBCTeam

What warnings did you receive about radiation side effects beyond skin burns?

It's completely understandable to feel frustrated if you weren't fully informed about what to expect. Radiation can cause more than just burns, and you deserved to know about all potential side effects beforehand.

Beyond skin changes, radiation Show Full Answer

What warnings did you receive about radiation side effects beyond skin burns?

It's completely understandable to feel frustrated if you weren't fully informed about what to expect. Radiation can cause more than just burns, and you deserved to know about all potential side effects beforehand.

Beyond skin changes, radiation can cause:

* Fatigue that builds gradually and may last months or even years after treatment
* Swelling (edema) of the breast
* Long-term effects like skin thickening or shrinkage of the treated breast
* Rarely, lymphedema (fluid buildup in the arms)
* Increased sun sensitivity in treated areas for at least a year or longer
* Higher risk of skin cancer in the treated area
* Damage to fatty tissue in or around the breast
* Breast pain

Some side effects appear during treatment, while others may not show up until six months or more later. The severity varies based on factors like breast size, skin tone, other treatments like chemotherapy, and the specific radiation technique used.

A MyBCTeam member shared: "You won't feel much of anything at first. Over time, it's like a gradual sunburn." Another noted ongoing burning six months after treatment ended.

If you're experiencing unexpected side effects, please reach out to your radiation oncologist. They can provide guidance on managing symptoms and what to expect moving forward.

January 30

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