Breast Cancer

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Just wanted to see how many people still get pain after a mastectomy and reconstruction?

Just wanted to see how many people still get pain after a mastectomy and reconstruction?

I am 4 years post mastectomy with immediate implant reconstruction. I still get lots of pain all around the site every day. In addition to this I also have pain at the back of my arm just were it joins my back. This feels like a burning pain. The pain there was really bad after my operation. It was more painful than the mastectomy site.

Just wondered if this is usual and if it will ever stop hurting!

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A MyBCTeam Member said:

Hi Elaine. I found a new PS who moved my implants from under my muscles to over them and he removed the capsular contracture, causing pain and… read more

edited, originally posted 3 days ago
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Does anyone else have friends that either treat you like you're dying or that Stage 1 breast cancer is no big deal?

Does anyone else have friends that either treat you like you're dying or that Stage 1 breast cancer is no big deal?

I have some friends that have absolutely driven me crazy! All through diagnosis and treatment, a couple acted like I was on the verge of death and it irritated the heck out of me! One compared my cancer to a friend's uterine cancer and the pain from her hysterectomy! Then, I had one who actually said, "oh stage one is barely even cancer!" I know this was just their way of dealing with my diagnosis… read more

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A MyBCTeam Member said:

A few of my closest friends kind of disappeared when I was diagnosed. Im 32 and was 31 at the time of my dx. I think it scared a lot of my friends, but… read more

posted 1 day ago
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How much extra help is needed after bilateralmastectomy?

How much extra help is needed after bilateralmastectomy?

My hubby is taking a week off & my kids are older teens and self sufficient. Im not javing any chemo or radiation. Will I really need alot of help for weeks 2-3 when im just laying around? My mom wants to take a month off work (unpaid) and fly up here. I REALLY feel like this will disrupt out lives more than it will help. I know her intentions are good and I’m grateful that she loves me so much. I want to set clear boundaries and ask her to just come… read more

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A MyBCTeam Member said:

Your mom does not need to be here for a month. Youll be surprised at how well you do i think. I had my bilateral mastectomy on a wednesday and was… read more

posted 1 day ago
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I have been seeing a lot of people posting about recurrence. If you are triple positive let me know if this is you.

I have been seeing a lot of people posting about recurrence. If you are triple positive let me know if this is you.

I am just trying to see how many triple positive breast cancer survivors actually have recurrences.

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A MyBCTeam Member said:

you tend to focus on the recurrence when there are so many more that have not. I think we take it for granite--you see the postings because this is only… read more

posted 6 days ago
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How important is a MRI in diagnosing reoccurence?

How important is a MRI in diagnosing reoccurence?

I am 2 1/2 years out from chemo from aggressive TNBC. I also have a lot of other medical conditions. One of them is severe degenerative disease in my spine and herniated discs. I had surgery in April which failed and I am I. Pretty much constant pain. I really don’t want any more surgeries, I have had 8 surgeries in 3 years plus a ton of medical procedures. One of the options they are giving me is to implant a spine stimulation device in my back to disrupt pain… read more

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A MyBCTeam Member said:

I was stage II , grade 3 but they still treated it aggressively with chemo and radiation.since I am TNBC I have a much higher reoccurence rate because… read more

posted about 2 hours ago
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I currently have textured silicone implants that are going to be removed . They have turned upside down. Would you go with saline

I currently have textured silicone implants that are going to be removed . They have turned upside down. Would you go with saline

Or the smooth silicone gel implants and why? Pros and cons of both please

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A MyBCTeam Member said:

I’m not sure. I’m booked for the first part of reconstruction. Expanders,saline to fill it to the size then the implant.

posted 2 days ago
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BRCA 1 research

BRCA 1 research

Any research on one daughter being positive and one being negative?

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A MyBCTeam Member said:

50 50 chance and just the luck of the draw. Im BRCA 2 positive.

posted 1 day ago
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Did you get an arm tattoo in the effected side post lymph dissection? Did you get lymphadema?

Did you get an arm tattoo in the effected side post lymph dissection? Did you get lymphadema?

Question for anyone that has gotten an arm tattoo post lymph dissection on the effected side...did it cause you to develop lymphedema in that arm? I am really wanting to finish out my sleeve and am not trying to move to the other arm yet.

Please only answer if you personally have gotten one. I am looking for actual results/experiences, not opinions.

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A MyBCTeam Member said:

Thank you @A MyBCTeam Member! I was planning on informing them if I was to go through with. Please keep me posted on how yours goes!

posted 7 days ago
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Did your cholesterol levels increase after chemo and Letrozole?

Did your cholesterol levels increase after chemo and Letrozole?

I finished chemotherapy on April 8th. Started Letrozole May 8th. Had reconstruction surgery on June 27. I just had a full blood workup 3 days ago when I had my woman's wellness annual exam. Results showed that my cholesterol and LDL levels increased to what's considered to be very high levels. My oncologist said it's too soon to evaluate blood related tests. And that my body can take a year to recover from chemo and estrogen reducing meds. Both of… read more

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A MyBCTeam Member said:

I have being doing Low Carb High Fat, moderate protein,(LCHF) way of eating not really a diet. For over a year now, my cholesterol did go up temporarily… read more

posted 4 days ago
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