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Bilateral mastectomy in June of 2025. 2/2026 reconstruction. MRI clear scan in July. This just appeared out nowhere. Breast surgeon peeked at it quickly through ultrasound and said it's benign. Getting biopsy soon. Anyone experience anything like this? Btw... lumps are non cancerous side.

October 23
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A MyBCTeam Member

Hi Kam. I have an area of far necrosis. I had tram flap reconstruction at the same time as my right breast mastectomy. I then went thru chemo immediately followed by radiation. The radiation really damaged the reconstruction. One of the conditions it caused is fat necrosis. The whole left side of the right side reconstructed breast is hard/solid. Like bone or hard cartridge. At this point I'd love to just have the reconstruction removed. But I've been told by several doctors that there isn't anything they can do. They don't believe it will heal well or maybe not heal because it's irradiated tissue so they won't remove it.
The things we live with after cancer and treatment. At least I get to live.😌

October 24
A MyBCTeam Member

That's great you are staying on top of things especially since you've now confirmed you are dealing with some idiots. The biopsy should have been automatically suggested by surgeon since once you've been diagnosed with cancer any abnormal mass or lump needs a biopsy to rule out a cancer recurrence.. Once the biopsy is done and results are available you can relax, but be sure to have the area checked for changes whenever you have any sort of scans done in the future. Any good radioligist will automatically compare your newer scans with the older ones and look for changes. My tissue necrosis showed up in 2022 and they still check it out and notate it in my quarterly PET scans over 4 years later.

October 24
A MyBCTeam Member

@A MyBCTeam Member yes, at least we are alive. My implanted breast which was radiated is smaller then the other one too. I agree.

October 24
A MyBCTeam Member

@A MyBCTeam Member thank you for tips. Mammogram tech was clueless. She didn't know why I was there. Same small practice but clearly they didn't communicate with one another. I had my ultrasound 2 days prior to attempted mammogram. She was frustrated that there was no breast tissue. Yes, I had bilateral mastectomy with implant reconstruction. My surgeon already looked at it with his ultrasound wand and said it's benign. I want to double check bevause I was misdiagnosed and dismissed prior to this. Biopsy will be accurate for sure.

October 24
A MyBCTeam Member

They shouldn't be squishing your implants in a mammigram machine. I'm guessing if you have an implant that means you had a mastectomy which also means they shouldn't be doing a mammogram on you at all. The US guided core biopsy is the standard of care to confirm the fat necrosis is really a fat necrosis.

I've learned there are a lot of good oncology doctors out there and that there are a lot of idiots and lazy ones too. The best thing that all of us cancer patients can and should do is research absolutely everything about our cancer, treatments, surgeries, scans, and medications and become educated enough that we can intelligently advocate for ourselves and catch the idiot and lazy doctors/medical personnel when or before they are making mistakes with our care. Tip for the biopsy - ask the doctor to layer the numbing shots at different depths around the area being biopsied to make sure you are numb all along the paths the needle will take. It really sucks if they don't numb you properly and you can feel the needle in some spots. Good luck, I hope your biopsy goes well ❀️

October 24

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