I don't understand why I would have to see my breast surgeon who amputated my breasts when they removed all my breast tissue and was told I was cancer free by the oncologist. What can the surgeon even be checking for? It seems very strange to me almost as if it's a cash grab from insurance or something? (+my $45 copay). Mastectomy was 5/25. DIEP reconstruction was 9/25. She also had me have a breast ultrasound and mammogram without any breast tissue and was rather painful. I do not⦠read more
That's odd they did a mammogram after a mastectomy. My doctors told me I would never have another mammogram once the double mastectomy had been done because there's not breast tissue left to squish into the mammogram machine. I had the total mastectomy where nipples and majority of skin were removed. I would think an ultrasound followed by either a breast MRI or a PET scan would be a more practical way to see what's going on in the post mastectomy portions of your chest.
They will also be checking for any fluid buildup- lymphedema can happen at any time (even years later) after surgery, but is more likely to show up during that first year as your body is developing new pathways for the lymph fluid to flow through. You should ask- it will serve as a reminder to them, that patient education is an important part of their job as well! Once you get the answers, come back and educate us, too! Hugs!
ConnieChapman,
My understanding of my own DIEP flap reconstruction of the left breast- is that it's non breast tissue so I do not need mammograms.I still have mammograms of the right breast every six months. My surgery was 4/1/26 so I have to see my surgeon for follow up for at least a year. If there are no complications then I don't have to see him further.
Some patients may experience fat necrosis where transferred fat dies and forms painful lumps,hernias, abdominal weakness etc. Is it possible that she is monitoring for possible surgical side effects and not cancer recurrence?
I would ask the surgeon why the visits ? What is she looking for? These are all valid questions that she should be able to answer transparently.
I keep a running list of questions for all my doctors on my phone so I dont go blank when I'm at the appointment.
I wish you all the best in your recovery and trying to get back to where you feel good about the results. Hugs.
Your frustration is completely understandable β and for the record, wanting to feel good about how you look isn't vain, it's human! Let's break down why these follow-ups actually matter even after a bilateral mastectomy.
Even when all breast tissue is removed and you're told you're cancer free, follow-up care serves some Show Full Answer
Has anyone had an abnormal genetic report of chromosome 13? If so, what type of surgery did you get?