Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How many on here have developed neuropathy and have seen a neurologist?

A MyBCTeam Member asked a question 💭
Rochester, NY

Have the majority of BC patients been diagnosed with neuropathy by the oncology department and work with them for treatment or their internist?

June 10
 · 
Reactions
A MyBCTeam Member

@A MyBCTeam Member
If you still have the exercise sheet, is there any way to download and share the neuropathy exercises with us?

I think that there is a big audience for that.

June 10
A MyBCTeam Member

I have mild neuropathy in my toes, from the Letrozole and Anastrozole. My primary care doctor gave me a sheet of exercises for it and put me on Meloxicam for pain. I found better exercises online. The Meloxicam doesn't really help but the pain isn't bad. The numbness and tingling is worse. I am pretty much just dealing with it hoping it clears up after the five years on the AI is over.

June 10
MyBCTeam

Neuropathy is very common among breast cancer patients — it affects between 57% and 83% of those who've received taxane-based chemotherapy. So you're definitely not alone in dealing with this!

Other chemo drugs linked to nerve damage include:

- Platinum-based drugs like cisplatin and carboplatin
- Vinca alkaloids like Show Full Answer

Neuropathy is very common among breast cancer patients — it affects between 57% and 83% of those who've received taxane-based chemotherapy. So you're definitely not alone in dealing with this!

Other chemo drugs linked to nerve damage include:

- Platinum-based drugs like cisplatin and carboplatin
- Vinca alkaloids like vincristine and vinorelbine
- Hormone therapy drugs like anastrozole, letrozole, and tamoxifen As for who manages it — most people start with their oncologist, who is often the first to recognize and diagnose chemotherapy-induced peripheral neuropathy (CIPN). From there, it really depends on the severity.

- Mild to moderate cases are often managed within the oncology team
- More complex or persistent cases may be referred to a neurologist
- Some people also loop in their primary care doctor for ongoing management

A MyBCTeam member shared that nerve pain can be unpredictable, describing it as coming and going for years after treatment.

The key takeaway: don't hesitate to advocate for a referral to a neurologist if your oncology team isn't fully addressing your symptoms. You deserve proper care!

June 10
A MyBCTeam Member

My internet diagnosed it but my palliative doctor prescribed the medication I am taking.

June 10
A MyBCTeam Member

This is the one that my primary care doctor gave me.
https://healthsystem.osumc.edu/pteduc/docs/Exer...
(recommended 10 repetitions, 3 sets)

This is the one I found online. They seem to work better for me.
https://www.hingehealth.com/resources/articles/...
(recommended 10 repetitions, 3 sets)

You can do a search for neuropathy exercises and find videos if you prefer them. The exercises are predominantly for neuropathy in the feet and legs. If you have pain in your hands/wrists you can search for them specifically. I hope they help!

9 Foot Exercises For Neuropathy Management
9 Foot Exercises For Neuropathy Management
https://www.hingehealth.com/resources/articles/foot-exercises-neuropathy/
June 10 (edited)

Related Questions

View All

How many on here got neuropathy after taking any Aromatase Inhibitors?

A MyBCTeam Member asked a question 💭
Rochester, NY
June 10

Did Kat Timpf Have a Double Mastectomy? Her Story
I Was Supposed to Have a Baby, Not Breast Cancer
Being 23 and Told You Have Breast Cancer