Do most medical oncologists treat this condition?
Is it necessary to see a neurologist and have both needle and electrical current tests on both arms and legs to rule out anything if your Internist is suggesting this?
Or is this overkill? Especially if one doesn’t want to take Gabapentin or any other meds?
Answer Summary
Members discussed whether seeing a neurologist and having nerve conduction tests is necessary for neuropathy related to aromatase inhibitors... Read more
I developed peripheral neuropathy during chemo and had a dose reduction. After chemo, I exercised and did self-massage of my hands and feet (rolled them on a tennis ball) and after 2 years the neuropathy improved. OK for about a year. Then 18 months ago the neuropathy worsened again - numbness, pins and needles, burning, electric shocks, tingling in my feet, ankles, legs, arms and hands. I've been on an aromatase inhibitor for 4.5 years and have developed carpal tunnel syndrome as a result.
My GP referred me to a private neurologist, who told me it was all in my head and gave me antidepressants, which I didn't take. I waited 10 months to see the neurologist at my cancer hospital and he is taking me seriously. I recommend seeing a neurologist with experience in cancer and the effects of cancer treatments.
I've had a nerve conduction test, nerve test that confirmed mild carpal tunnel syndrome, and blood tests. I get my results from the neurologist tomorrow.
I've also been diagnosed recently with osteoarthritis in my knees and am having scans of my hips soon (possible bursitis). My knees have been very swollen, which I've been told can trigger tingling and other nerve sensations in the legs if the swelling impinges on a nerve. Aromatase inhibitors can make osteoarthritis worse by reducing the synovial fluid in your joints and causing joint pain on top of the arthritis pain.
Sorry if this is a stupid question, but are neuropathy and carpal tunnel related? I was treated for diabetic neuropathy by my endocrinologist (Gabapentin seems to work for me), and I had carpal tunnel release decades ago with no further problems. Since starting chemo in April, I noticed an increase in neuropathy. I started adding magnesium glycinate (200 mg) to my nightly Gabapentin. I had immediate relief.
I had both carpal and cubital tunnel (wrist and elbow. I talked to my primary about my neuropathy in my fingers. She sent me to a hand surgeon. He sent me to a nerve specialist. They put a light current from your hand to your shoulder. It does not hurt. It is just a strange sensation. He determined that I needed both done. I had problems resting on my elbow. Because I worked as an electronic tech, I was always using tools and typing, I cannot blame this on breast cancer treatments but It may have contributed. The surgeon told me that I should not wait too long to have it done as my nerves would die. My friend had hand issues also and did not have anything done and she has difficulty using her hands now. I am glad that I had it done.
These are really great questions, and it's completely understandable to want clarity before committing to more tests or medications. Neuropathy from aromatase inhibitors (AIs) is a recognized side effect, and how it's managed can vary depending on its severity and impact on daily life.
Regarding who treats it:
- Medical Show Full Answer
I had neuropathy in my toes and fingertips while on chemo. We stopped the chemo a little early. It never worsened or improved, but is only somewhat annoying and does not affect my quality of life.