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A MyBCTeam Member asked a question 💭
Rochester, NY

When did the neuropathy start and where on your body?

Is carpal tunnel syndrome considered a neuropathy?

June 10
 · 
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Answer Summary

Members responding to the question about neuropathy from aromatase inhibitors shared that symptoms most commonly appeared in the toes,... Read more

Members responding to the question about neuropathy from aromatase inhibitors shared that symptoms most commonly appeared in the toes, fingers, hands, and feet, with many experiencing onset during or shortly after chemotherapy rather than from the AIs alone. Several members shared practical relief strategies, including propping limbs on pillows, using Nervive cream or castor oil packs, taking duloxetine or gabapentin, doing chair yoga, and elevating legs to improve circulation. A recurring theme was learning to live with persistent numbness while finding comfort in community support, faith, and the reassurance that for many, the neuropathy had not gotten worse over time.

A MyBCTeam Member

I haven't taken anything to relieve the neuropathy. My doctor had said it may or may not go away. It hasn't gone away in ten years, but is only annoying at times.
I'm not a fan of piling on one med after another. It really doesn't interfere with my quality of life, so I just go with it.

June 13
A MyBCTeam Member

Taxol and Keytruda both caused peripheral neuropathy - and a minor IV physical trauma led to left thumb and index finger pain, tingling and numbness.... all can be healed by (1) total body PEMA (2) enhancing stem cell release and activity... the body will be completed renewed.

June 11
A MyBCTeam Member

Plus, some really good remedies are contraindicated with Eliquis and BP meds.
Makes me mad. Who knew?

June 17 (edited)
A MyBCTeam Member

Thank you! I too would constantly drop things, buttons were a nightmare. But now that I just finished my meds and have been off them since December, things seem to be better. So it can be from the Anastrozole. I know that this medication in itself can cause joint and bone pain, not to mention fatigue but that has not changed yet for me. I say yet in hopes that it will improve. Hang in there and again thank you for your prayers and Angel wings!

June 14
A MyBCTeam Member

I have Lymphedema in my right arm which has caused really bad Carpal Tunnel Syndrome. The alternative to surgery is to wear a brace, not that its going to do anything. But if I have the surgery, it will enhance the Lymphedema. So its like being between a rock and a hard place. I have lost feeling in my thumb and next two fingers, due to that. My other hand has also started to bother me. I have just finished my Arimidex treatment and hoping it will subside somewhat. Sorry for all your pain and complications. Here is hoping that you get relief soon.

June 13

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