Should you push for a PET scan with elevated tumor markers and suspected paraneoplastic autonomic failure?
Given your elevated CA 15-3 and CA 27-29 tumor markers along with suspected paraneoplastic autonomic failure, it's definitely worth having a conversation with your oncology team about imaging. Paraneoplastic syndromes Show Full Answer
Should you push for a PET scan with elevated tumor markers and suspected paraneoplastic autonomic failure?
Given your elevated CA 15-3 and CA 27-29 tumor markers along with suspected paraneoplastic autonomic failure, it's definitely worth having a conversation with your oncology team about imaging. Paraneoplastic syndromes can sometimes appear before other cancer symptoms become noticeable, and prompt diagnosis is important because these syndromes can affect clinical outcomes.
PET scans are typically used in metastatic breast cancer to monitor treatment response rather than for routine follow-up in earlier stages. However, your situation with elevated markers and suspected paraneoplastic symptoms may warrant additional investigation.
Bring up your concerns about the elevated markers combined with your autonomic symptoms. Your medical team can help determine if a PET scan or other imaging would be appropriate based on your complete clinical picture. Are others experiencing post-treatment paraneoplastic issues?
Paraneoplastic syndromes are relatively rare, occurring in about 20 percent of people with cancer overall, but specific neurological paraneoplastic syndromes occur in less than 1 percent of people with breast cancer. Because they're uncommon, you might not find many members with this exact experience, but connecting with others about post-treatment complications in general can still provide valuable support.
MyBCTeam members often share experiences about various post-treatment challenges and coping strategies, even if the specific conditions differ. What wisdom can help you navigate this?
Here are some key points to consider:
- Trust your instincts about your body. If something feels wrong, advocate for yourself with your medical team
- Keep detailed records of your symptoms, when they occur, and their severity to share with doctors
- Paraneoplastic syndromes can be managed with various treatments including corticosteroids, immunosuppressants, and other therapies depending on which body systems are affected
- Having a support person at appointments can help you remember information and ask important questions
- Don't hesitate to seek second opinions if you feel your concerns aren't being adequately addressed
Your situation is complex with bilateral cancers of different DNA types, so staying proactive about monitoring is important.
February 17
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