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A MyBCTeam Member asked a question 💭
Meridian, Idaho, ID

Just started taking (Capecitabine) Xeloda, anyone else taking this oral chemo? What side effects, if any, are you having? How long before the side effects started.

May 18, 2014
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A MyBCTeam Member

I have been on zeloda for a reoccurance in my liver and bones since April. I didn't notice any side effects until a couple of months in. Mostly it has been the dryness and peeling of my hands and feet and how sore they get. I have found soaking in Epson salts and moisturize like crazy has helped quite a bit. However, i do experience random days of extreme fatigue, sleeping for 16-20 hours, which lasts anywhere from 3-5 days. I have no idea when it will occur and it's gone just like it came. Anyone else experience the same or similar?

September 11, 2014
A MyBCTeam Member

Just started taking Xeloda. Am very concerned that I had to wait for Cyberknife brain radiation for tumor next to optic nerve, then10 general radiation treatments to spine and pelvis, then 8 days for "radiation rebound" effects to my esophagus and stomach, advanced pace treatments of Zometa and Faslodex (every 2 weeks instead of 4). I was diagnosed mid Feb. and all this time with no chemo going to my liver, right ribs, right clavicle, and a large tumor in my right lung lying next to my heart I could feel the increase in pin and practically see the growth. Anxiety is bad for the mental toughness you need to fight. I have a very positive outlook overall, a great support group of friends, family and church, but I confess to worry when I see how long some of these women can tolerate Xeloda. My Onco has me on 3,500 mg/day and he's saying 4 months of 2 weeks on, 1 week off. Anyone made it that long? So far 8 days in no side effects.

June 13, 2023
A MyBCTeam Member

On my 3rd round of the Xeloda, I can tell it's not working because I have new 'lumps'. Also have increased sensitivity to hands and feet, and so tired. My feet peeled during the 2nd round, not noticing it yet. Calling dr Monday, see if I can switch to a different chemo. One Day At A Time.

July 5, 2014
A MyBCTeam Member

I had no side effects at all. 4000mg a day, one week on one week off for 3 months.
But my PET scan after three months was worse so
I started IV chemo yesterday.

July 4, 2014
A MyBCTeam Member

Thank you everyone. Dr lowered my dose to 2000 mg a day. See if my body handles this dosage better. I started Monday, so too early to have any side effects yet. Hopefully my feet don't get painful as quickly.

June 11, 2014

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