For many people, lymph node removal is a critical step in breast cancer treatment. Removing your lymph nodes gives your doctor more information about the potential spread of cancer and may help guide further treatment.
Unfortunately, the procedure can come with unpleasant side effects, including unexpected smells — such as underarm odor — and skin problems. “It has been five days since my lumpectomy and lymph nodes biopsy,” a MyBCTeam member wrote. “Overall, I am feeling good, but I have soreness and numbness at the lymph node incision.”
Here are some common side effects you should know about, along with helpful advice, including firsthand tips from MyBCTeam members.
Knowing what to expect before heading into surgery can help you mentally prepare and gather what you’ll need for recovery. Depending on the extent of your surgery, lymph node removal may require several weeks of healing. You can get ready by stocking up on the right supplies and asking others for support to get you through the process.
Side effects of breast cancer lymph node removal may include:
Members of MyBCTeam have also described stubborn body odor that’s unlike anything they experienced before surgery. “I have an incredible sense of smell, and yes, the smell is on the side of my lymph node removal,” one member said. “I go for lymphedema massage therapy and notice it smells worse after therapy. Maybe when they work on the buildup, it releases whatever gets clogged, and that’s what smells.”
The following four tips can help you manage the potential unpleasant side effects you may face after breast cancer lymph node removal.
Friction is your skin’s worst enemy when healing from lymph node removal. Fortunately, cornstarch can help keep your underarms dry and stop the skin from rubbing together and becoming irritated. Make sure you have clearance from your surgeon to resume using deodorant — timing may vary, but it’s usually recommended to wait until incisions are closed and drains have been removed for some time.
You can apply cornstarch with less mess by carefully scooping a small amount into a thin sock or stocking and tying a knot at the top. Then, gently place the sock against your armpit skin for light coverage — make sure not to shake it into the air, as loose powder can be inhaled.
Powders shouldn’t be used on open wounds or incision areas. Stop use immediately if you feel any irritation.
Some members of MyBCTeam have noted an unpleasant underarm odor after lymph node removal. One member described it as smelling like “rotten meat.” Another reported that the odor persists after several years. “It’s been 20 years, and it’s still horrible and embarrassing,” they wrote. “You can get out of the shower, and it’s still there after scrubbing. It’s not every day, though, only periodically.”
One member who didn’t want to give up deodorant found success using a vegan product from Love Beauty and Planet. Another said, “I have found that Clinique deodorant really works. It is unscented, yet it really helps keep the odor away.”
Managing sweating and body odor after breast surgery may mean trying a few different options. Once your doctor clears you to use products on your armpit, you can see whether deodorant, antiperspirant, or natural powders work best for you.
It’s normal to feel weak and sore after lymph node surgery. You’ll probably have a limited range of motion, along with a higher risk of swelling (lymphedema).
Movement is an essential part of recovery. Early gentle movement is encouraged, but it’s important not to overdo it. Follow the plan prescribed by your medical team and progress gradually. A physical therapist can help guide you on the right type and number of exercises to perform as you heal.
The right amount of exercise will help you improve your strength and fight off dangerous infections and blood clots. Getting plenty of rest and gradually building up your stamina by walking is a good starting point in the early days after your procedure.
MyBCTeam members have discussed how to incorporate movement into their lives after surgery. “I asked to see a physical therapist, which has helped greatly,” one member said. “The physical therapist provided me with a sticky strip to reduce scar tissue, which also helped tremendously.”
Avoid intense exercise, weight lifting, and strenuous tasks (including housework) until your doctor gives you the green light. Even lifting something like a bag of groceries or cat litter can cause damage that might set you back. Instead, ask for help and plan to take a break from physical activity until your body is ready.
As mentioned, lymphedema is one of the most dreaded side effects of lymph node removal surgery. Normally, the lymphatic system drains excess fluid, but this process doesn’t always happen as smoothly after lymph node dissection.
Lymphedema may make your arm feel heavy and your skin feel tight. Lymphedema is easier to control when detected early, so let your healthcare provider know immediately if you’re experiencing these arm symptoms.
Injuries may worsen swelling and may lead to dangerous consequences, like a skin infection. While accidents happen, you can do your part to avoid getting injured by taking special precautions. For example:
One MyBCTeam member described their experience with infection and lymphedema: “I’ve been dealing with lymphedema. It seems like forever,” they said. “This is my second bout with cancer. I wear a compression sleeve and got massages for a while. I also wrap my arm at night. I caught an infection in that area, which blew my arm up to like three times the regular size.”
If you get injured after lymph node removal or have signs of infection, such as a fever or a rash, let your doctor know right away so you can discuss treatment options.
Some people develop armpit scars after lymph node removal. Inflammation of the connective tissue can lead to the formation of tight bands known as cording or banding. Also known as axillary web syndrome, scarring may extend as far down as the thumb.
Cording can be painful, but it usually isn’t dangerous. However, it can significantly limit your range of motion. Axillary web syndrome should be evaluated by a physical therapist or lymphedema therapist, who can develop a treatment plan for you to follow.
Treatments may include structured stretching, physical therapy, and massage. Anti-inflammatory medications may help reduce inflammation and relieve pain. Tell your healthcare professional if you’re starting to notice scar tissue so you can take action to help reduce it.
Breast cancer is a lot for anyone to cope with, even when you have a strong support system. Sometimes undergoing surgery or experiencing complications can affect your mental health.
One member described their struggles: “I can’t sleep. I suffer from anxiety attacks. I’ve changed as a person. I go off at the smallest things, don’t go out (only in my garden), can’t mix with people, and don’t have sex with my partner. I don’t like being hugged. I’ve had cancer twice, and now I have it for the third time. I feel angry and lost. My family doesn’t understand why I’m like I am. But life for me is just so, so hard.”
Emotional pain requires your attention, just as physical pain does. If you’re having a tough time after lymph node removal surgery, ask your breast cancer team about meeting with a mental health provider for support and resources to address your concerns.
On MyBCTeam, people share their experiences with breast cancer, get advice, and find support from others who understand.
If you’ve had lymph node surgery, do you have any underarm skin care or general wellness tips for life after surgery? Let others know in the comments below.
Get updates directly to your inbox.
I had lymph nodes removed under my left arm pit. But now my right one is constantly wet and pitting out constantly! Really embarrassing.
Become a member to get even more
This is a member-feature!
Sign up for free to view article comments.
I have had small cyst like knot come up around the area of the scars where my lymph Nodes were removed .. Has anyone else experienced this.. I go for a diagnostic ultra sound on Thursday to be for… read more
We'd love to hear from you! Please share your name and email to post and read comments.
You'll also get the latest articles directly to your inbox.