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Members shared their personal struggles with recurring migraines made worse by aromatase inhibitors (AIs), with many feeling dismissed by... Read more
@A MyBCTeam Member
Here is financial information.
AMBASSADOR
Sue10 asked a question 💭
Rochester, NY
@A MyBCTeam Member was having a good day 🙂
From Sheila Knight
“Hello my sisters! As promised I am listing resources that my Medicare broker printed out to help with various medical costs and other needs... meds, co-pays, financial assistance, free counseling services, etc.”
( 1)- Cancer Financial Assistance Coalition (CFAC)- searchable database of national and regional organizations that provide financial assistance and other services for people with cancer.
(2) NeedyMeds- helps patients without prescription coverage by providing information about assistance programs for prescription medications at no cost.
(3) CancerCare (866-552-6729) for guidance re: co-pays, guidance and referrals for additional help.
(4) Patient Access Network (866-316-7263) assists patients who cannot access treatments they need because of out-of-pocket care costs like deductibles, co-pays and coinsurance.
(5) Patient Advocate Foundation (800-532-5274) offers a co-payments relief program and seeks to ensure patients access to care.
(6) Partnership for Prescription Assistance (888-477-2669) matches patients to programs offering free or low-cost prescription medications. Also, CancerCare professional oncology social workers can refer patients for financial assistance and to organizations that offer free counseling services.
(7) Komen Treatment Assistance Fund (877-465-6636) Service provides financial assistance/Grants medical expenses for low-income or uninsured breast cancer survivors.
(8) American Breast Cancer Foundation (ABCF) Breast cancer assistance program for screening, testing, financial assistance/grants (Phone number can only be seen by the question and answer creators) or 844-219-2223).
(9) Tennessee Breast Cancer
Coalition(TBCC)- Emergency Access Fund (615-377-8777) Provides financial assistance/Grants for residents diagnosed with Breast cancer, undergoing treatment, and in financial need due to inability to work and/or mounting medical expenses, currently while undergoing treatment.
(10) Pfizer RxPathways (844-989-7284) Provides patient support assistance for medications made by Pfizer ex: Ibrance. I hope this information helps someone in need! I love my sisters! Take care!😁🤗❤️❤️❤️
October 12, 2023 (edited)
@A MyBCTeam Member
1) $900 + the $600=$1500/month. Can't swing it. Both drug companies base assistance on the national poverty leveI x300%. I don't qualify.(Too rich to be poor!) Worth asking. I get Creon for $0. Copay is $400. That drug company has more realistic income guidelines. Grateful. My headache specialist provided assistance links for both.
2) Original oncologist would not consider a lower dose; begged her.
3) I asked new onco about newly approved drug in November. He said a drug in the same family is available. He did move my appointment 3 weeks closer. I messaged migraines were getting worse and legs still very weak. See him virtually on Tuesday. Will learn then what he plans.
4) First onco said just STOP all AIs based on 82yo, cane, hand braces. I reminded her I wanted to LIVE! Changed oncologist that day.
Mary I have a friend who is also named Mary. This may sound strange but she has migraines and does Botox injections in her neck. They are FDA approved. It helps her tremendously. Just a thought. Hugs!
@lissaj thx. Good ideas I already use. Folks don't realize how incapacitating migrains every other day are. All from lower estrogen! Had before but worse now. Headache neurologist and primary both encouraged adding the Nurtec. See onco today and his opinion. Had it this am. Working.
I've tried acupuncture. Didn't help me. It has worked on other pains.
@A MyBCTeam Member Hey I have had recurring migraines for many years. I have a few things that help a little. And actually recently tried acupuncture and I have been finding some relief from that.
#1 for me Apply an ice pack or cold compress to your head or neck for 10 to 15 minutes. Amazon had a head wrap that you can put in the freezer as well as microwave.
My once prescribed me codeine because how bad my migraines were. And that only helped with caffeine which has been proven to help with migraines. Even ibuprofen/tylenol with caffeine can help.
Light massages on your temples or the base of your skull. Especially with essential oils like peppermint or lavender. And Amazon has a rub on stick that has the essential oil in it you just rub in your temples.
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