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A MyBCTeam Member asked a question πŸ’­
Albion, NY
May 26
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MyBCTeam

Yes, some people do choose to stop or refuse hormone blockers (also called hormonal therapy), often because the side effects feel too hard to manage. A MyBCTeam member shared: "I am currently on a one-month break and feeling much better! The weight gain was too overwhelming for me. I felt miserable all the time."

Common Show Full Answer

Yes, some people do choose to stop or refuse hormone blockers (also called hormonal therapy), often because the side effects feel too hard to manage. A MyBCTeam member shared: "I am currently on a one-month break and feeling much better! The weight gain was too overwhelming for me. I felt miserable all the time."

Common reasons people stop or refuse include:

- Hot flashes and night sweats
- Weight gain
- Vaginal dryness
- Joint and bone pain
- Mood swings
- Fatigue It's really important to talk to your oncologist before stopping, though. Hormonal therapy can lower the risk of breast cancer recurrence by up to 50% and reduce the risk of dying from breast cancer by 30%.

Your care team may be able to suggest ways to manage side effects, or switch to a different type of hormonal therapy that suits you better. There's no one-size-fits-all here β€” it's about finding what works for you.

May 26
A MyBCTeam Member

I do injections of Methotrexate for the Psoriatic Arthritis and Psoriasis. I’ve tried many things over the years and the methotrexate works best for me.

May 28
A MyBCTeam Member

I had a double Mastectomy on Feb 23rd. The Breast Cancer Surgeon referred me to an Oncologist for Endocrine Therapy. I'll be 70 next week. I've had Chronic Pain and Chronic Fatigue for many years now due to Psoriatic Arthritis and Fibromyalgia. I also have Psoriasis, Diabetes, Hypothyroidism, and Celiac Disease. I had to go out on permanent disability 14 years ago. Some days I have trouble getting out of bed to my recliner. Most days I'm too fatigued to even leave my apartment. I've already survived a benign Brain Tumor, Malignant Melanoma, and two heart attacks, two bouts of Pneumonia and Septic Shock. I lost my soulmate to COVID back in 2021. I have brothers, but we're not close and rarely see each other. I've weighed the quality of life over quantity of life and decided not to do Hormone Therapy.

May 26
A MyBCTeam Member

Thank you.

May 28
A MyBCTeam Member

@A MyBCTeam Member

I hear your story and send hugs.
You are already death so much, especially the fibro fibromyalgia and psoriatic arthritis.
We all have to make our own decisions and choices.

Are you on the MyFibroTeam site?
Wonderful group there.

I have a relative just diagnosed with psoriatic arthritis.
Have you done any of those meds such as Skyrizi to stop the inflammation and have you found anything to help you?

Many thanks.
Sue πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ

May 27

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