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My question may sound silly butttttt..here we go I ha vcd e had treatment a total of 13 years yes I have Metastatic Breast Cancer HER2 pos

A MyBCTeam Member asked a question 💭
Chelsea, VT

Does this mean I am in remission because my cancer did not wake up under treatment? My last infusion was April 2025 stopped because of toxicity of the heart. My Cancer has NOY WOKEN UP...
IS THIS REMISSION?

February 21
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MyBCTeam

Your question isn't silly at all! After 13 years of treatment for metastatic HER2-positive breast cancer with no signs of cancer activity, you're asking an important question about your status.

Remission typically means there's no evidence of cancer after treatment. Complete remission means all signs and symptoms have Show Full Answer

Your question isn't silly at all! After 13 years of treatment for metastatic HER2-positive breast cancer with no signs of cancer activity, you're asking an important question about your status.

Remission typically means there's no evidence of cancer after treatment. Complete remission means all signs and symptoms have disappeared. It's now more common for metastatic breast cancer to go into complete remission.

However, with metastatic breast cancer, the term "remission" can be complex. If your cancer hasn't progressed or "woken up" during continuous treatment, this might be considered controlled disease rather than traditional remission, since you were actively on treatment keeping it in check.

Since you stopped treatment in April 2025 due to heart toxicity, your oncology team will need to monitor you closely with imaging and tests to determine your current status. They'll assess whether:

- There's truly no evidence of disease (complete remission)
- The cancer remains stable without treatment
- You need alternative maintenance therapy

This is definitely a conversation to have with your oncology care team. They can review your recent scans and tests to give you a clear answer about whether you're in remission and what monitoring or next steps might be needed.

Your 13-year journey is remarkable, and it's understandable you want clarity on where you stand now.

February 21
A MyBCTeam Member

Often, doctors will refer to a situation as NED (no evidence of disease) or NEAD (no evidence of active disease), rather than remission. With NEAD, they may see lesions where cancer had been active- but does not appear to be active now.

Ask your doctors what your current status is- and what the appropriate monitoring protocols are. Keep us posted!! Hugs

February 21
A MyBCTeam Member

Hello AndiHunt. It's not a silly question that you asked. That's awesome if you're in remission. I would definitely talk to health care team immediately. Crucial monitoring is important. Take care 🙏✝️🙏

February 21
A MyBCTeam Member

@A MyBCTeam Member

Are you trying to contact the site as you are not getting email posts in your email?

I do not do that and just sign in and read posts in the drop downs in both upper left and right.

February 21 (edited)
A MyBCTeam Member

Verify my email

February 21

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