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After getting an axillary ultrasound and CT they could not determine why my arm was swollen. I had no blood clot nor lymphedema. Has anybody experienced this and what is it??

November 13, 2025
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A MyBCTeam Member

Good luck with the ultrasound next week- perhaps in comparing the two, they will be able to spot something different that will clue them in on what happened. How is your arm? Is the swelling going down? (I hope?) Gentle hugs!

November 13, 2025
A MyBCTeam Member

Hi @A MyBCTeam Member
Did you ever find out what was causing your swelling?

December 31, 2025
A MyBCTeam Member

My surgeon scheduled a repeat ultrasound for next week. Ty for your knowledge.

November 13, 2025
MyBCTeam

What could cause sudden arm swelling after bilateral mastectomy besides blood clots or lymphedema?

Sudden arm swelling after breast cancer surgery can be concerning, especially when blood clots and lymphedema have been ruled out. There are a few other possibilities to consider.

A seroma could be causing your swelling Show Full Answer

What could cause sudden arm swelling after bilateral mastectomy besides blood clots or lymphedema?

Sudden arm swelling after breast cancer surgery can be concerning, especially when blood clots and lymphedema have been ruled out. There are a few other possibilities to consider.

A seroma could be causing your swelling. This is a collection of clear fluid that can develop under the skin after surgery. While seromas typically appear within a week or two after an operation, they can sometimes form later or in areas near the surgical site, including the arm or armpit area.

You might also be experiencing fluid buildup related to inflammation or post-surgical changes in your tissue. After a bilateral mastectomy, your body's lymphatic system may be working differently, and fluid can sometimes collect in unexpected ways.

Axillary web syndrome is another possibility. This occurs when scar tissue forms in the armpit after lymph node removal, which can sometimes cause swelling and limit movement.

A MyBCTeam member shared a similar experience: "There's a huge concave area... This is where the fluid is collecting." Another mentioned needing multiple drainage procedures for fluid buildup.

Since your medical team hasn't identified the cause yet, it's important to follow up with your surgeon or oncologist. They may recommend additional imaging, drainage if fluid is present, or physical therapy to help resolve the swelling.

November 13, 2025

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