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Invasive Lobular Carcinoma
Right breast mastectomy... Took whole breast inc. nipple & areola bc mass was right next to it.
Sentinel node Biopsy showed no Lymph node involvement
Low 19 onco score...
Tumor is nonagressive
Margins all clean
Surgeon said no radiation needed & no chemo.

September 1, 2025
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A MyBCTeam Member

Its very unfortunate @A MyBCTeam Member that scans are not more frequent, even DEXA scans, but it is not considered "standard of care" and so its an insurance/medical care issue. That is a very common conundrum. Doctors don't do it so there is no evidence that it's helpful so insurance wont pay for it and doctors dont want to fight the insurance companies. So, to your point, it doesnt seem right because it isnt. Your meter is right on. Just because everyone does it that way does not mean its the right thing to do. Keep asking questions. Keep challenging what is. Stand up for what treatment you feel is right. 🐾❤️🦋

September 1, 2025
MyBCTeam

Question: Should I get more frequent bone density scans if I'm concerned about bone damage from letrozole?

Letrozole can affect bone health since it reduces estrogen levels, which can lead to bone thinning (osteopenia) and potentially osteoporosis. About 11% of women taking letrozole develop osteoporosis. Due to this Show Full Answer

Question: Should I get more frequent bone density scans if I'm concerned about bone damage from letrozole?

Letrozole can affect bone health since it reduces estrogen levels, which can lead to bone thinning (osteopenia) and potentially osteoporosis. About 11% of women taking letrozole develop osteoporosis. Due to this increased risk, your doctor should monitor your bone density regularly while you're on letrozole. Your specific case shows positive factors - clean margins, no lymph node involvement, and a low oncotype score. However, hormonal therapy with letrozole may still be recommended to prevent recurrence. Regular bone density monitoring is important whether or not you take letrozole, but the frequency of scans should be determined by your healthcare team based on your individual risk factors and bone health status.

September 1, 2025
A MyBCTeam Member

On 2nd year of AI. Known to have osteopenia before starting. DEXA scan after 9 months of AI shows worse osteopenia. But oncologist, Gyn and rad oncologist still say every 2 years scan is appropriate interval. Doesn’t seem right to me, but everything I read agrees…..anyone with same concern?

September 1, 2025

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