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A MyBCTeam Member asked a question 💭
Mays Landing, NJ

Ok looking for input on Xeloda, Tykerb or Faslodex - these are some names being thrown out by my oncologists as future possibilities. Not sure yet if this Kadcyla is working so those were some replacements they are looking at. Any input, experience, comments, etc on these drugs will be appreciated. Thanks!!

September 21, 2016
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Answer Summary

Members shared detailed experiences with Xeloda, Faslodex, and Tykerb as treatment options, with many describing Xeloda as tolerable but... Read more

Members shared detailed experiences with Xeloda, Faslodex, and Tykerb as treatment options, with many describing Xeloda as tolerable but challenging due to side effects like peeling hands and feet, fatigue, nausea, and the complexity of dosing schedules, while several noted it was easier than infusion chemotherapy and didn't cause hair loss. Faslodex injections emerged as a common alternative to oral hormone blockers, with members consistently describing the shots as painful due to the thick, syrup-like consistency being slowly pushed into the buttocks, though most found the discomfort manageable and appreciated fewer systemic side effects compared to pills like Arimidex or Femara, with practical tips shared including warming the medication to room temperature, moving around afterward, and requesting experienced nurses. A recurring theme was the tension between treatment efficacy and quality of life, as members navigated difficult decisions about switching medications when current therapies stopped working, balancing hope for tumor shrinkage against fear of debilitating side effects, with many emphasizing the importance of self-advocacy, staying informed about insurance coverage for expensive drugs, and leaning on the community for both practical advice and emotional support during uncertain times.

A MyBCTeam Member

Be sure to ask the nurse to allow the injection to warm to room temp. (they are generally stored chilled) This will help at least a little bit with the pain. My medical facility is about 90 minutes from my house so I plan on stopping about halfway home and walking and moving about a bit. This has helped with the stiffness and some of the soreness associated with my monthly Faslodex injections.

October 3, 2016
A MyBCTeam Member

@A MyBCTeam Member, I don't have any side effects. Make sure you get good injection nurses. I specifically asked for certain ones. They are not created equally!

November 15, 2016
A MyBCTeam Member

On Faslodex for over a year!

October 30, 2016
A MyBCTeam Member

@A MyBCTeam Member - for the most part. Been taking the oxy before bed and it seems to work descent. Tried taking just naproxen but that seems to wear off in the middle of the night. Pop a couple tylenols and try to get back to sleep. I'm hanging in just waiting for new treatment to start. HUGS

October 4, 2016
A MyBCTeam Member

Faxlodex is 2 shots they push slowly into the top of your butt. It takes literally a minute or longer to push it in. I lean my elbows on a countertop when they are injecting it (easier to stand still). Also, don't lean on side they are injecting - less soreness later. You'll do great. It's pretty easy, just get sore afterwards for a few days or not at all!! You go girl!!

September 28, 2016

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