Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Mammo failed to find my cancer due to my dense tissue. Diagnostic ultrasound - due to my clinical symptom - saved my life. Lost some faith in mammo - wondering if anyone had the same experience?

May 4, 2014
 · 
Reactions

Answer Summary

Members shared deeply personal experiences with mammography's limitations in detecting cancer in dense breast tissue, with many describing how... Read more

Members shared deeply personal experiences with mammography's limitations in detecting cancer in dense breast tissue, with many describing how their cancers were missed on routine mammograms but found through ultrasound, MRI, or self-discovery, sometimes years or months after clear screening results. Several members emphasized the life-saving importance of self-advocacy, including insisting on additional imaging when something feels wrong, demanding second opinions when doctors dismiss concerns, and ensuring that family members with dense breasts get supplemental screening like ultrasounds or MRIs rather than relying on mammography alone. A recurring theme was the critical need for dense breast notification laws, better insurance coverage for supplemental screening, and empowering patients to trust their instincts and persist even when medical professionals provide reassurance, as early detection through alternative imaging methods proved essential to survival for many in this community.

A MyBCTeam Member

I had a 3D mammogram. My insurance only paid for the standard mammogram, but I paid the extra cost of the 3D. I have dense breasts, and the 3D mammogram did show an abnormality in my left breast. I was sent for an ultrasound which led to a biopsy of and subsequent diagnosis of Stage 1A ductal carcinoma. It’s sad that so many insurance companies only pay for the minimum. The $100 I paid out of pocket for the 3D could very well have saved my life.

March 6, 2024
A MyBCTeam Member

I learned the hard way that mammo + US is no where near as good as just a MRI. I was (incorrectly) told for years that mammo + US is good for dense breasts but it completely missed my cancer. Was found on MRI,

January 21, 2024
A MyBCTeam Member

I hear all of you… my story is sooo long and it’s like parts of all of what you ladies have said.. bottom line .. if I make it through this outing with cancer .. I’ll be going straight to the MRI machine because nothing else works for me..I just HATE what cancer does to our lives..Blessings to all..😘

August 14, 2023
A MyBCTeam Member

Thanks all for your input - it is amazing to hear your stories. I have been a proponent for mammography forever as I am in breast imaging practice management and education. The failure to find my cancer has impelled me to work to individualize screening according to type of tissue and risk profile - mammography is not the panacea for all women. Lesson learned the hard way:-( Your stories tell it like it is - hit and miss.
I am now an advocate for those with dense breasts. A dear colleague is Nancy Cappello, pHd., http://www.areyoudenseadvocacy.org has helped pass dense breast notification legislation in 15 states.
I am currently attending the American Roentgen Ray Society breast imaging track in San Diego finding like minded breast imagers to help advance this paradigm change -
Although I still have mammograms - it is the accepted pathway to other imaging - I am combining that with whole breast ultrasound and Contrast Enhanced Spectral Mammography. I travel for both. I do not choose MRI for my hi-risk screenings - too many false positives - led to my loosing too much healthy tissue in surgery. But better than a false negative and has served some of you well per your responses.
On the use and value of BSE - Stats show it does not find cancers at their earliest stages but along with a good clinical breast exam has always optimized early detection - especially important since there is no perfect imaging strategy. US has missed some of your cancers and MRI has found some. Thus it is important to be aware - to know your breasts - if I had not noticed my small changed my cancer would have been found much later.

May 6, 2014
A MyBCTeam Member

Same here. Had mammogram in December 2022 and felt lump in July 2023 and confirmed by ultrasound August 2023. Invasive ductal carcinoma and lobular carcinoma post surgery path report.

January 1, 2024

Related Questions

View All
A MyBCTeam Member asked a question 💭
St Louis, MO

A MyBCTeam Member asked a question 💭
Barceloneta, PR