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I found this resource after my Dr turned me down when I asked to have a bilateral ultrasound done along with my diagnostic mammo. Dr's comment was "you're not even 6 months out of treatment". Im not sure what that has to do with it. Frustrated I went on a search and found HERSCAN, a mobile unit that doesn't require insurance or dr referral. Having been told I have dense tissue, knowing mammo doesn't always detect tumors as dense tissue is the same color on imaging so why would she not… read more
Answer Summary
Members rallied around the question of accessing bilateral ultrasounds for dense breast tissue, with many affirming the original poster's... Read more
@A MyBCTeam Member
I have dense right breast and mastectomy at my left breast.
I was told I don’t have any follow up with my left mastectomy except if I develop any symptoms. For my right breast (which is dense) I have mammogram and ultrasound every year for follow up.
I will check with my oncologist if I can have MRI on next visit.
Thank you!
It's so frustrating as a cancer patient to always have to fight to get the treatments and services we are entitled to. As an FYI, women with dense breast tissue have the legal right to have a mammogram and a MRI on a yearly basis. Typically you have one test done (mammogram) and then 6 months later you have the other test done (MRI) and you get to do this each and every year. You are legally entitled to this
protocol before cancer is ever diagnosed.
And yes, peace of mind is priceless! Good luck with your ultrasound ❤️
@RipleyZigler
Bravo! You did the right thing to advocate and get ultrasound.
I do believe that the protocol for women without BC but with dense breasts is to have both mammograms and ultrasounds.
Your doctor could have said, go ahead anyway on your own. Not to debate apples and oranges with her, if you wish to pay, it is your right.
@A MyBCTeam Member I came across another imaging process, called Molecular Breast Imaging (MBI) designed specifically for women with dense breast tissue- thought I would add the links, just in case this might be something your insurance would approve. Might be worth an ask! Hugs!
https://www.mayoclinic.org/tests-procedures/mol...
https://newsnetwork.mayoclinic.org/discussion/m....
It's a constant fight! After a year of fighting with my oncologist, I was finally able to get my oncologist to release my second tumor sample to Natera. I literally had to get my advocate at Natera to have the Natera research department call and explain that both cancers were different (Lobular and Ductal) and need to be treated as different tumor types. My oncologist kept telling me and even put it on my UCLA chart that the Natera test looks for ANY circulating tumor cells so both IDC & ILC. This is not correct. I will finally get my test done next week on second tumor type. Praying it is negative or I will be in his office and it wont be pretty!!!
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