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Has anyone else been diagnosed with 2 different types of breast cancer (one in the right and another type in the left breast)? Is this rare? More common than I think? It came as a complete shock when I got this diagnosis after a double mastectomy with lymph node removal. The pathology on my left breast revealed a previously undetected and so un diagnosed ILC cancer in my
Left breast. We did that breast as a precaution against future cancer diagnosis and so I was expecting the results to come… read more
I agree with Lori, it is more common than you think.
Some cases, like me, are where I had 2 different subgroups of cancer in the same lump (mostly triple negative with a dash of HER2+).
I know there are a few ladies like me who have had multiple lumps that expressed different subgroups.
And I think there are a few, like you, that have 2 different types of breast cancer (ILC and IDC).
Hopefully those that are similar to you will speak up and let you know how this impacts treatment.
@A MyBCTeam Member Hello, My oncotype score came back very low at an unheard of 4 (I was eternally grateful). i also had the BRCA test and that also came back negative. There is no genetic reason we know of for me to have breast cancer. I did have fertility treatment for years and never had a baby so that is probably adding to the increased "environmental" factors that contributed to me having breast cancer. I was just surprised to have 2 different kinds. I had to undergo treatment because even though the ILC was Stage 1, they could not get the margins they needed and the cancer was on my chest wall. Radiation is just another way to add assurance that I am doing everything I can to stay healthy. I also now on Tamoxifen. I am not enjoying that either! How are you? Do you need radiation?
I was diagnosed in my left breast with ILC, IDC and invasive lobular. My right breast was clear on mammogram and mri but I opted for the bilateral surgery. Pathology showed that I had a microscopic ILC in my . I think the mamo and MRI have some limitaations and this is how the very early detection is saving women. Thank god you made your decision.
@A MyBCTeam Member I am glad you were able to have a baby. Not conceiving was one of my greatest heartbreaks. But I have learned to live and to give back in other ways besides being a mother (being an Auntie is pretty awesome!!). I cannot believe you were a zero. That is amazing. Good for you I agree we are lucky. Stage 1 is a blessing and I am grateful for all the love and support I have received. I am still not loving the recontruction but, oh well, I will learn to at least like them :) Sending hugs your way
@A MyBCTeam Member - No - they said I didn't need radiation or chemo. I was also very lucky - my Oncotype score was 0!! My Oncologist said that is only the second 0 he has seen in all his years of practice. I didn't think about yours being close to your chest wall. Thankfully, mine wasn't. I just hope this Anastrozole will take care of it. I also had fertility treatments before I had my first daughter, and have taken estrogen for 21 years, since my oophorectomy. I'm pretty sure that didn't help me avoid breast cancer :( I'm doing well and really can't complain - I could be SO much worse!
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