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A MyBCTeam Member asked a question πŸ’­
Kewaunee, WI

I was diagnosed with stage two level three invasive ductal carcinoma in August 2025 had 18 rounds of chemo double mastectomy removing 13 lymph nodes and 16 rounds of radiation. I am on an inhibitor and they wanna put me on Kisquli, anyone on this medication and how are you handling side effects?

October 24
 · 
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MyBCTeam

What a journey you've been on β€” that's a lot to go through, and it makes sense to want to know what's ahead with Kisqali before starting it. You're asking exactly the right questions.

Kisqali (ribociclib) is an FDA-approved medication for HR-positive, HER2-negative breast cancer. For early breast cancer with a high risk of Show Full Answer

What a journey you've been on β€” that's a lot to go through, and it makes sense to want to know what's ahead with Kisqali before starting it. You're asking exactly the right questions.

Kisqali (ribociclib) is an FDA-approved medication for HR-positive, HER2-negative breast cancer. For early breast cancer with a high risk of recurrence (like stage 2 or 3), it's typically taken as a 400mg daily pill for 21 days on, then 7 days off, in 28-day cycles β€” usually for about three years. The most commonly reported side effects include:

- Low white blood cell counts (very common β€” often leads to extra blood tests)
- Fatigue
- Nausea, diarrhea, or constipation
- Headache
- Hair loss
- Rash or itching

More serious side effects to watch for include heart rhythm changes, liver enzyme increases, and lung problems. These are monitored closely by your care team. MyBCTeam members who've taken Kisqali share some helpful tips for managing it:

1. Keep up with blood work and monitoring β€” low white blood cell counts sometimes mean a brief treatment pause
2. Ask your doctor about timing β€” one MyBCTeam member found switching from evening to morning dosing helped with insomnia
3. Don't hesitate to discuss dose changes β€” a MyBCTeam member had their dose lowered due to heart rhythm concerns, and things normalized afterward
4. Look into financial assistance β€” Novartis offers a co-pay program; eligible commercial insurance patients may pay as little as $0 Many MyBCTeam members also report positive outcomes β€” stable scans, improved tumor markers, and feeling like the 3-weeks-on/1-week-off schedule is manageable at home.

Staying in close contact with your care team about any side effects is really key. You've already shown incredible strength getting through everything you have β€” you've got this! πŸ’ͺ

October 24

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