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The website has my cancer wrong. I keep getting messages on dealing with tripple - and I have tripple + breast cancer. How do I change it?

A MyBCTeam Member asked a question 💭
Longview, WA

I have invasive ductile carcinoma stage one, HER-2+, ER+, PR+, no node involvement. I had 4 lumps 8mm, 4mm, 2mm and 1.2mm. When I had my lumpectomy they found a 9cm DCIS that had a 1mm margin. I then had a resection. That came back with DCIS one portion touching the margin for 1mm another with less than 1mm margin for 2mm. I now need another resection.

June 1
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A MyBCTeam Member

@A MyBCTeam Member and @A MyBCTeam Member
I hope you both were able to update your profile to the correct cancer type. That should help. Another helpful tool is the Groups function. Click the tab along the top "Groups" and scroll down, you will find a group for Triple Positive. There you can connect quickly with members and conversations that have indicated an interest in that diagnosis. You may see other Groups that interest you as well, you can join as many (or none) as you want. Anything posted there, also shows up in the main feed, so you may get replies from others outside of the group. Hope this helps!
Hugs!

June 2
A MyBCTeam Member

And when do we know if the chemo is working!?? I still have hair so I’m worried it’s not working!! Tchp protocol

June 1
A MyBCTeam Member

Same here! Triple positive! Her2 stage 2 with a 10x4x3 lobular mass, no lymph nodes. But I’m not getting info that relates!

June 1
MyBCTeam

That's really frustrating — getting information that doesn't match your situation isn't helpful at all! To update your cancer type on MyBCTeam, head to your profile settings and look for the section where you can edit your diagnosis details. Updating that should help tailor the content you receive to better match your Show Full Answer

That's really frustrating — getting information that doesn't match your situation isn't helpful at all! To update your cancer type on MyBCTeam, head to your profile settings and look for the section where you can edit your diagnosis details. Updating that should help tailor the content you receive to better match your HER2+, ER+, PR+ diagnosis. You're clearly navigating a complex situation, and it's completely understandable to feel overwhelmed. Here's a quick summary of where things stand:

- Your invasive ductal carcinoma is Stage 1 with no node involvement — that's an important positive
- The 9cm DCIS found during your lumpectomy was a significant finding
- Margins are a key concern — when cancer cells are found at or very close to the surgical edge, another resection is often needed to ensure all the cancer is removed

The goal of the upcoming resection is to achieve what doctors call "clear margins," meaning no cancer cells are touching the edges of the removed tissue.

It's worth having a detailed conversation with your surgeon about what clear margins would look like for your specific case, and whether additional treatments like radiation or targeted therapy for HER2+ cancer may follow. You absolutely have the right to ask questions and even seek a second opinion if that would give you peace of mind.

June 1

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