I have been on anastrozole, another AI which i have had side effects to all of them. Thinking about stopping the tamoxifen and not taking anything. I had a double mastectomy. No chemo and no radiation. Thoughts please.
It's completely understandable to feel this way — dealing with side effects from multiple hormonal therapies is exhausting, and wanting a break makes total sense. That said, stopping tamoxifen without talking to your oncologist first is something to really think carefully about.
Research shows that stopping hormonal Show Full Answer
Keep your team up to date with how challenging the meds are. They can possibly adjust the dose, or even change manufacturers. There have been pink sisters here who tolerated the same med better with a different manufacturer as they each have the core drug-but use different inert materials. And there is a third common AI, Letrozole that you might have better luck with. Keeping you in prayers! Hugs!
I also could not take any of the AI treatment I wish I could have cause here i am a year later, with er+ pr+ in left breast now, they call it a new cancer because her2 was negative this time which I did complete treatment for that. So trust me I know it's almost impossible to stay on those treatments. Of course they want me to try again after surgery. I already know that's a loosing battle for me. Some woman seem to be ok with it, so I tried all 3.. but not the injections. Think about that they can give you an injection I think every 3 weeks but you have the same side affects, it's a no win. Im sorry you can't take them!
@TinsRayDaniels
You are at a crossroads.
You have not said what your symptoms
were with the AI’s or Tamoxifen.
You should research the following:
Lower dose of tamoxifen.
Lower doses of Letrozole and Exemestane. Or continue taking whatever AI or Tamoxifen has the least side effects.
Go to Pub Med and find the trials.
This situation is a “what if.”
You have options now to protect yourself. Your Drs. need to explain exactly what is the % risk of metastatic cancer if you stop all AI ‘s or tamoxifen.
No one can make this decision for you.
We are all here to support you in whatever decision you make.
❤️❤️❤️❤️❤️❤️❤️