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DCIS and have auto immune disease called sjogrens.

April 13
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A MyBCTeam Member

@A MyBCTeam Member, DCIS is often referred to as Stage 0 because of how small it is, and that is non-invasive. However, Tuddles has said her receptor status came back Estrogen 99%, and they were going to do genetic testing.

@A MyBCTeam Member Did they ever do your genetic testing, and what were the results? Being as your diagnosis is at the earliest point- if you need more time to comfortably make your decision, then let them know. Have you consulted with the doctor that treats you for Sjogrens? You may want to look into a second opinion to help you feel more confident in your path forward. Keeping you in prayers! Hugs!

April 13
A MyBCTeam Member

What stage are you? I had stage one back in 2016. I had lumpectomy with no further treatment. In 2024 cancer came back in opposite breast as stage 3. I had mastectomy with implants and no other convectional treatment. If you decide on lumpectomy please monitor at least every 6 month. I went 3 to 4 years without a mamo and I believe that is why I ended up with stage 3. Good luck on which ever decision you make ♥️

April 13
MyBCTeam

What should you consider when choosing between lumpectomy with radiation or mastectomy for DCIS, especially with Sjögren's syndrome?

Having an autoimmune condition like Sjögren's is an important factor in your decision. Since you have Sjögren's, it's crucial to discuss with your surgical team whether this affects your Show Full Answer

What should you consider when choosing between lumpectomy with radiation or mastectomy for DCIS, especially with Sjögren's syndrome?

Having an autoimmune condition like Sjögren's is an important factor in your decision. Since you have Sjögren's, it's crucial to discuss with your surgical team whether this affects your ability to safely receive radiation therapy or impacts healing after surgery, as certain autoimmune conditions can influence treatment recommendations.

For DCIS specifically, here are key considerations:

Lumpectomy with Radiation:
- Preserves most of your breast tissue
- Typically followed by radiation therapy to reduce recurrence risk
- May not be ideal if you can't safely receive radiation due to health conditions
- Generally has fewer surgery-related side effects
- You may still be able to produce milk from that breast

Mastectomy:
- Removes all breast tissue
- May help you avoid radiation therapy (though sometimes still needed)
- Can offer more peace of mind about recurrence, though it's still possible
- More likely to cause ongoing issues like scarring, pain, or numbness
- You won't be able to produce milk from that breast afterward

Both options are considered equally effective treatments for DCIS. Reconstruction Considerations:

If you choose mastectomy, you have options:
- Going flat (no reconstruction)
- Breast reconstruction (immediate or delayed)
- Using breast prosthetics or forms under clothing

Reconstruction comes with its own risks, including:
- Blood clots
- Infections
- Loss of sensation
- Tissue death
- Scarring

With Sjögren's syndrome, healing and infection risk may be concerns worth discussing thoroughly with your plastic surgeon, as autoimmune conditions can affect surgical outcomes.

Some people feel more confident with reconstruction, while others are comfortable going flat to avoid additional surgery risks. There's no wrong choice—it's about what feels right for you.

Consider how each option might affect your long-term well-being, body image, and peace of mind. A MyBCTeam member's experience shows these are deeply personal decisions that depend on individual circumstances and priorities.

April 13
A MyBCTeam Member

@A MyBCTeam Member thank you for explaining that! I actually had no idea.

April 13

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Ottawa, ON