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What can be done for AIMSS symptoms as a result of taking Aromatase Inhibitors?
NIH
pmc.ncbi.nim.nih.gov
“Since their introduction into clinical use in the 1970s, aromatase inhibitors have been a cornerstone of therapy for estrogen-receptor positive breast cancer in postmenopausal women. Unfortunately, this therapy leads to estrogen depletion in the body, which can lead to unpleasant side effects such as menopausal symptoms like hot flashes, insomnia, slightly increased risk of ischemic heart… read more
Answer Summary
Members shared their experiences managing aromatase inhibitor-associated musculoskeletal syndrome (AIMSS), with many finding that a... Read more
All I can say is that while joint pain seems to be a side-effect of taking aromatase inhibitors, the last three years I’ve gone gluten free (@ 90% anyways) to reduce inflammation due to developing autoimmune disease (most likely from the damage from radiation on my thyroid). Anyway, after about six weeks the joint pain dramatically decreased. I’m on my eighth year of aromatase inhibitors.
Diagnosed in September 2024, had bilateral on January 2025 and I am still undecided on these AI pills. Ivermectin and Mebendazole (supposably) kills the cancer before it starts, so I'm not sure why I should take AI. I have to admit I still get a bit nervous since I have high estrogen levels but I don't worry about it daily. I take one day at a time. I feel healthy and have no health problems. I praise the dear lord above for the courage he has given me to choose a different path! Hugs and prayers to all my pink sisters in whatever choice you make ♥️
I tried multiple AI’s over 3 years as my body started falling apart, including miserable pain. The conditions all improved once I stopped. I’m in my 5th year now since my mastectomy and some of the pain, periodic insomnia and mild hot flashes are reappearing. Sometimes I exhibit pain that is like the beginnings of a heart event. Yes, AI’s mess with heart health too.
Last year I was diagnosed with Barrett’s Esophagus as the AI can also trigger GERD symptoms. The surgery I had for that years ago doesn’t last a lifetime and adds to the list of things to care for.
I expect to outlive the chance of recurrence, so I have chosen to not be tortured any more than is absolutely necessary. You choose what is best for YOU, I choose to not live in fear.
@A MyBCTeam Member
There have been pros and cons about collagen. I still take it.
You could research which foods are high in collagen.I think that coleslaw is one.
As one gets older , one has less collagen and it is hard to eat enough collagen-rich foods and metabolize them.
@A MyBCTeam Member I don’t know about amazing. Fortunate, yes. My oncologist told me I would be on the medication for 10 years due to the age I was diagnosed (50). I’ve tried to maintain some sort of exercise throughout. Before all this, I’d actually lost 30 pounds. Chemo (threw me into menopause), radiation and aromatase inhibitors put it all back on especially as no estrogen floating in my system and radiation harmed my thyroid. So, I exercise to try not to get bigger, maintain my bone density and muscle mass and strength. Today, I’m finally seeing some progress in my recent strength training program (7 weeks in).
BTW my bone density scans come back looking wonderful. Thank goodness one less issue to worry about. Again, I am fortunate. I’m hoping to just maintain weight and when I go off the medication, perhaps I’ll be able to shed a few pounds 🤞
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