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A MyBCTeam Member asked a question 💭
Chelsea, VT
November 20, 2025
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A MyBCTeam Member

Consulting a lymphedema specialist - usually part of physical therapy dept- may give you the best answers.

November 25, 2025
A MyBCTeam Member

Your oncologist should know about lymphedema along with its causes, symptoms, and treatments. Surgeons are there for the mastectomy/lumpectomy and reconstructive surgery. They are not necessarily experts on lymphedema. I personally would get a second opinion from a different oncologist and consider finding a new oncologist. Physical therapy is also available to help treat lymphedema and teach you how to cope with it.

November 20, 2025
MyBCTeam

Yes, lymphedema is directly connected to breast cancer treatment. It's a possible side effect that occurs when certain treatments damage the lymphatic system, preventing fluid from draining properly.

About 1 out of 5 people who undergo breast cancer treatments develop lymphedema. The condition causes swelling and pain in Show Full Answer

Yes, lymphedema is directly connected to breast cancer treatment. It's a possible side effect that occurs when certain treatments damage the lymphatic system, preventing fluid from draining properly.

About 1 out of 5 people who undergo breast cancer treatments develop lymphedema. The condition causes swelling and pain in the arm, hand, breast, chest, or abdomen.

Lymphedema happens when surgery or radiation therapy damages lymph nodes or lymph vessels. This damage prevents lymph fluid from circulating normally, causing it to build up in tissues and create swelling.

The risk varies depending on your treatment type:

- Sentinel lymph node biopsy (removing 1-2 nodes): Fewer than 7% develop lymphedema
- Axillary lymph node dissection (removing many nodes): Up to 1 in 4 people develop it
- Radiation therapy to the underarm area increases risk further

Most cases appear within three years after treatment, with about 90% occurring during this timeframe. Some people notice it suddenly, while others experience gradual development.

Early symptoms can include numbness, tingling, aches, heaviness, or changes in how clothing fits. A MyBCTeam member shared: "My earliest recognizable symptom was elbow pain."

While there's no guaranteed way to prevent lymphedema entirely, discussing your specific surgery options and risk factors with your doctor before treatment can help minimize your chances of developing it.

November 20, 2025
A MyBCTeam Member

@A MyBCTeam Member

Your question really is:
Why did I get lymphedema years later when diagnosed with metastatic breast cancer and not in the first three years after your first surgery???

Lymphedema can happen at any time.
Radiation can cause lymphedema as can surgery.
The lymph nodes get damaged or blocked.

I would not fault the oncologist.
Damage can be done to lymph nodes with surgery either.

November 20, 2025
A MyBCTeam Member

I asked my Onocoligist he said talk to a surgeon??

November 20, 2025

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