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A MyBCTeam Member asked a question 💭
Medina, OH
September 20, 2025
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MyBCTeam

Herceptin (trastuzumab) is commonly used to treat HER2-positive breast cancer, which is considered an aggressive form of breast cancer. While it can be life-saving, it's important to be aware of potential side effects.

Common side effects reported by MyBCTeam members include
• Whole body numbness
• Aching
• Weakness
Show Full Answer

Herceptin (trastuzumab) is commonly used to treat HER2-positive breast cancer, which is considered an aggressive form of breast cancer. While it can be life-saving, it's important to be aware of potential side effects.

Common side effects reported by MyBCTeam members include:
• Whole body numbness
• Aching
• Weakness
• Unusual sensations
• Fatigue One significant concern with Herceptin is its potential impact on heart health. About 8.3% of patients receiving Herceptin develop heart-related issues, compared to 2.7% of those who don't receive it.

Because of this risk, your healthcare team should regularly monitor your heart function during treatment. In some cases, heart medications can help manage these side effects while continuing treatment. Some patients may need to adjust their treatment plan based on how their heart responds.

September 20, 2025
A MyBCTeam Member

Helpful. Thank you!!

September 20, 2025
A MyBCTeam Member

I used Herceptin for a year and just finished my last treatment with it on Sep 4th...the first infusion was dreadful, I felt like I got hit by a flu bus in a matter of hours and went to bed thinking "what have I done to myself ad there's no way I can do this for a year" - by 4am in the morning it was like a switch flipped and I felt amazingly normal again. For the next 4 months I was taking chemo at the same time as the Herceptin so couldn't tell what part of the side effects were the chemo vs the Herceptin but as of January I've only been on the Herceptin so was again able to tell it was the Herceptin causing nausea all day on the day I was infused (my oncologist said this was not a usual side effect) - I also had extreme fatigue and am just now starting to get over that. For me, the side effects were not enough to stop taking the Herceptin. I also have heart disease (CAD) but had routine Echo's and everything stayed within normal limits. Hope this helps!

September 20, 2025
A MyBCTeam Member

The oncologist wanted me to take herceptin but I have too many family members with heart related issues and I wasn’t going to risk it! Everyone has different reactions to the bc drugs…

September 20, 2025

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