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Did you just stop AI’s altogether after Letrozole or switch to something else?

How many years did you take Letrozole?

June 4, 2025
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A MyBCTeam Member

I have been on Letrozole/Femara for 5 yrs now. I was 56 yrs young at the time. Told now that I will need to be on it for TEN years. UGH I was started on it durring the tail end of chemo so I was already with no hair. My eyelashes and eyebrows are non existent. I only shave legs maybe 2x/summer. Pubes always first to return, LOL. Skin became even dryer, brittle nails, joint pain is awful, especially hips and left shoulder. Insomnia worse, occasional wicked headaches which I never had before. Evening hot flashes. I feel like my internal thermostat is broken. Cold/hot clothes on, off...I already have 3 herniated disks so I can't say if that got worse. When my hair grew in it was course, thin and straight. I keep saying yes I am happy it's back, I just don't know who's it is. I started taking a collagen supplement daily. Helped with joint pain. Finger and toe nails got somewhat less brittle and really grew faster. Hair grows faster, still thin, but got curly again...yay. Good luck fellow warriors. XO

June 4, 2025
A MyBCTeam Member

I took letrozole for four years before I had any symptoms which was pain in my feet. It was manageable but I brought it up to my oncologist at the time. They took me off letrozole for a month to see if it got better…it did. They switched me to exemestane and I’m doing just as well and it’s been about three years.
Something I’ve noticed in the last couple of years is that when I don’t eat as clean as I normally do (I.e., foods with gluten and/or more processed foods, etc.) I get more aches and pains but when I minimize gluten, processed, and sugar…I feel great. So, was it the letrozole or was it my diet? I’m leaning towards my diet having the greater impact while on AI’s. My two cents ☺️

June 4, 2025
A MyBCTeam Member

I had joint pain and bone density issues but my last bone density test was really great and for the first time in years.. High
blood pressure and high cholesterol were also issues at one time.. Dry skin and thinning hair were ussues in the beginning, but not now. I did have some hot flashes but I was never sure if it was the meds or my age. I try to drink a lot of. water, rest when I need to, that doesn't always happen but, I try, and eat a good healthy diet. I do some stretches and light exercises most days and I do everything I can to not stress out about anything. I have an occasional glass of wine and I sometimes eat dark chocolate. I also take magnesium and D3 with calcium. I try really hard to be grateful for all I have, volunteer as much as possible and just stay as positive as I can. I do have good and bad days but everybody does
It's a journey even after the completion of the treatments. I'm just so happy go be alive and as healthy as I am. It a good thing. I only took letrozole and I had chemo and radiation.
Happy Wednesday to all of you. Wishing all of you the very best. Endless hugs.

June 4, 2025
A MyBCTeam Member

That Kisqali tumor reducing drug cost between $14,000 to $20,000 per month. This is ALL INSANE what is going on. Criminal. Highway robbery.

June 10, 2025
A MyBCTeam Member

I have been on anastrazole for 8 years. It was a rough beginning but I
think my body Is used to it. I function fairly well. I developed arthritis
symptoms and joint pain which I take celexicob for. Hot flashes are less
now. I walk almost every day at least a mile. I use my stationary bike a
few times a week. I garden and paint. Keeping busy and exercise help. I
feel blessed my mammograms have been clear
(Mastectomy in 2017) and am grateful each day. Good luck to all of you.

June 4, 2025

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