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Completed 3 of 4 chemo tx due to allergies reaction. Finished 6 1/2 weeks radiation minus last radiation tx due to potassium level bottoming out the last week causing cardiac stress and chest pain trip to ER to cath lab and one stent and overnight stay in ICU. On additional meds now for one year for heart stent issue …still don’t agree with anti hormonal meds due to excessive symptoms for 5 years! I’m 73 and waffeling on what’s best for my quality of life. Dx Invasive (slightly beyond) ductal… read more

June 1, 2025
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MyBCTeam

It's understandable to feel concerned about hormone therapy side effects, especially given your experience with treatment so far. Bone and joint pain are indeed common side effects of hormonal therapy, along with other symptoms like:

- Hot flashes
- Weight changes
- Mood swings
- Weakness When considering whether to Show Full Answer

It's understandable to feel concerned about hormone therapy side effects, especially given your experience with treatment so far. Bone and joint pain are indeed common side effects of hormonal therapy, along with other symptoms like:

- Hot flashes
- Weight changes
- Mood swings
- Weakness When considering whether to continue hormone therapy, it's important to discuss your quality of life concerns with your oncology team. They can:

- Evaluate if adjusting your medication dose might help reduce side effects
- Consider alternative hormone therapy options that might be better tolerated
- Help weigh the benefits of continuing treatment against the impact on your daily life
- Address specific concerns about bone pain and weakness

Remember that your wellbeing and comfort are important factors in treatment decisions, especially given your age and other health considerations.

June 1, 2025
A MyBCTeam Member

&LibdaHunte

Some folks can’t take melatonin.
There isstill the tart cherry capsules, magnesium capsules and generic Claritin at bedtime.

Check into accupuncture for your arm problems.

See if you can get a referral to a PT site that also deals with women who have had BC and can offer accupuncture, massage,,yoga, tai chi, and osteoporosis programs and can give you a personalized on on one PT to set up an exercise program for you.
Once a week is good. You can do these exercises laying in bed and modify them to do some when you have a bit of energy.

June 15, 2025
A MyBCTeam Member

I have been back on Claritin since October 2024 …because during chemo I also had WBC (white blood cell) injections which caused horrible bone pain all over the body after the first injection….the bone pain eased after I had been back on Claritin for more weeks….. (and also for my allergies that are daily because I live in FL).
My medical doc responded to my pain issue with “yes, that med can cause aches and pains” which doesn’t even come close to defining the bone pain I’m experiencing. I have a pretty good tolerance for pain but when the pain in my arms comes in waves it brings weakness with it…which is disturbing. It has eased up over the last couple of weeks since I stopped taking the anti-hormonal so it’s now tolerable again….and I have more pain after I do some slow, easy, static arm work in the swim spa….this could be because I’ve lost so much muscle mass since my diagnosis and surgery then chemo then radiation. My energy level did not always allow me to exercise my body and so my muscle mass has significantly decreased…..I’m still exercising all my muscles but I’m having to go very slowly and break it up through the week instead of every day if I’m not up to it.
I will also discuss with my Oncologist having my port removed soon because it may be causing some of the discomfort in my left arm too……I need to discuss the anti-hormonal issue also….I was never convinced that it was a course I wanted to do when he laid out my treatment plan…..I’ll be 74 this year and hope to have a couple of good years before this ca recurs if it’s going to because I want to stay active and travel and that treatment’s long term side effects will definitely not allow me to do that…..I went through the double chemo and the daily radiation with a smile on my face and a positive outlook to hopefully give myself more time….I don’t want my time to be marred by a med that may or may not give me additional time but that kicks my butt so far down that I can’t get up and LIVE my life. Probably docs won’t get that philosophy because they are here to keep us on earth as long as possible even when we aren’t “living” our best lives…I get that, but I’m hoping my Oncologist will understand since he sees “living and just getting” by on a daily basis….
Thanks for your suggestions….my sleeping isn’t too bad as long as the pain level is down in either arm/shoulder…..Just like with any medications I’ve had weird results trying melatonin also….antsy legs for 6 hrs the first night I used it…ack!

June 15, 2025
A MyBCTeam Member

@A MyBCTeam Member

If you decide to try an AI, my advice would be to take it at night.

Ask your Dr. if you can take genetic Claritin , Loratadine, which may help.
Clear through the Dr. taking melatonin and tart cherry capsules and magnesium for sleep.

All BC patients should be taking vitamin D and vitamin K.

If you already have arthritis, get back to me for remedies to clear through your doctor.

June 2, 2025
A MyBCTeam Member

@A MyBCTeam Member

This should be a discussion with your medical oncologist and also with your cardiologist.
You need to feel like you have your cardiology well-handled and feel fairly good.

73-78 is doable for Aromatase Inhibitors.
Any amount of years that you take will
add protection.

This is something that only you and your doctors can work out.

June 1, 2025

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