I don't have MS but I do have Sjogrens Syndrome which affects the central nervous system, joints, etc. Inflammation is not my friend and cannot take anti-inflammatory medications due to being on Eliquis for my heat. Talk about a double edged sword! Still I went through Taxol and still working through Herceptin. (I finish late July) My Herceptin dose is 3 times stronger than when I had Taxol too. However, I seem to tolerate it okay. The day after I get a little sick to my stomach and don't want to eat. I usually want a nap after I'm done with my infusion. I could have gone with the shot in my stomach, but I still have my port, so I just kept up with infusions. It's just once every 3 weeks, so tolerable. Feel free to ask me anything. I'm here to help others!

My first infusion yesterday went well and I felt fine to drive home. Today I’m feeling a bit disoriented, a little dizzy and my cognitive abilities are diminished a bit. I’m thinking that is more the MS reacting to the infusion. My eye sight is affected as well. Blurred vision is the worst. Hoping that improved over the next few days.

Hi Dawna,
Yes, it was rough for me. Especially because of the neuropathy. I was so exhausted and could not feel my feet most days, just the pain with the pins & needle feeling. My husband is retired and he drives me to appointments and treatment. My reaction time is slower now so I don't like to drive on the major highways.

@A MyBCTeam Member, thanks for the info!! Did you find your condition worsen with Chemo? My balance is not bad right now but it has changed over the years. I was DX in 2005 with Relapsing Remitting. I have a 1 hour drive to and from my infusion center and was concerned about being too tired to drive home after treatment.

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