She rcommended it to me bcs of the metastasis in my humerus.
Don't do it. I never tell women not to take cancer drugs but I will always tell them not to take the bone infusions as they are dangerous. I declined when my doctor wanted me to take it. Side effects are bad and not reversible. It's to protect your bones. Many women here are taking high levels of Vitamin D3 instead. Here is a discussion from here about it. https://www.mybcteam.com/questions/65d2da19073a...
It really does seem like oncologist only know about cancer drugs and nothing more. The other day I actually asked my oncologist ' Do you know anything about steroids''? Because I wanted to know something about the steroid the radiologist had prescribed for me. I learned when my oncologist got the result to my 2nd Vitamin D Hydroxy test which was now normal but a low normal and told me I should decrease from 5000 to 3000 . Like WHAT? Why would I consider lowering the dose when it hasn't reached a more moderate normal? I didn't argue with her but I had no intention lowering it.
Ok, pushy is not cool, especially when you are having dental work done. I would also research Vit D3s relationship to thrombosis because that is about the craziest thing I have heard. My first oncology provider put me on 1.25 mg once a week. That's 50,000 international units for comparison. I have had three oncology providers since then and none of them has an issue with it. I was Vit D deficient before cancer. Most women are. Best to be tested and then monitored. Maybe your PCP would be saner on the topic.
Here's what I found quick and dirty because I'm curious too. This is priceless. She got it backwards.
Not enough Vit D can increase risk for DVT or deep vein thrombosis. We also need Vit D to get calcium from our bodies and into our bones. There has been some debate for awhile but no causal relationship has ever been established. In other words Vit D supplements don't cause DVT. At least not at 400 iu. Which is only 10 mcg. Study is below.
Regarding the causal relationship between vitamin D deficiency and the risk of VTE, there were two previous randomized controlled studies attempting to address the issue [45,46]. One large-scale randomized, double-blind, placebo-controlled trial (RCT) involving 36,282 postmenopausal women aged 50–79 years in the United States demonstrated no significant effect of the supplementation with 400 IU of vitamin D and 1000 mg of calcium on the overall risk of VTE after an average follow-up of up to seven years .
45.Blondon M., Rodabough R.J., Budrys N., Johnson K.C., Berger J.S., Shikany J.M., Raiesdana A., Heckbert S.R., Manson J.E., LaCroix A.Z., et al. The effect of calcium plus vitamin D supplementation on the risk of venous thromboembolism. From the Women’s Health Initiative Randomized Controlled Trial. Thromb. Haemost. (Phone number can only be seen by the question and answer creators). doi: 10.1160/TH14-05-0478. [DOI] [PMC free article] [PubMed] [Google Scholar]
That’s great Karla but you need more than that of D3 . No, it’s not to late . I stated Anastrozole in oct 2023 and I never had a baseline D level and was only on 600 IU a day of Vit D so my oncologist did a vitamin D hydroxy test in March 2024 and Vit D level was very low so after reading here what other women were taking I ordered a bottle of 5000 IU and 7 months later had the Vitamin D test done again and it was normal but a low normal so it took 7 months to get from low to a low normal on 5000 IU’s and my doctor seeing this actually wanted me to drop it to 3000 IU’s that made no sense to me at all . I told her I would just do she would stop complaining about it and I still take 5000 IU’s . Just increase that amount and you will be fine Karla❤️
@A MyBCTeam Member, start the vitamin D3 now before beginning a hormone blocker to get ahead of it. If you know your bone density and its low take at least 3000 IU's daily. Most of us here take 5000 IU's a day. You good ask for a Vitamin D Hydroxy test which is just a blood test taken the same time as other lab work is done