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Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyBCTeam Member asked a question 💭
Lansdowne, PA

Do women new to this disease who are opting for double mastectomies understand when Breast cancer does recur it doesn't always come back in the breast? And mastectomy does not guarantee it won't come back elsewhere.

Unless a woman has an aggressive cancer I think she should really research if mastectomy is necessary. Understandably surgery is often one of the first weapons in fighting this and there isn't much time to research
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Can Breast Cancer Return After a Double Mastectomy?
Can Breast Cancer Return After a Double Mastectomy?
December 27, 2024
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Answer Summary

Members discussed the complex decision between lumpectomy and mastectomy, sharing a deep understanding that while double mastectomy reduces... Read more

Members discussed the complex decision between lumpectomy and mastectomy, sharing a deep understanding that while double mastectomy reduces local recurrence risk, breast cancer can still return in distant sites like lungs, liver, bones, or chest wall. Several members described factors that influenced their surgical choices, including BRCA mutations, multiple tumors, precancerous changes in both breasts, aggressive cancer grades, desire to avoid radiation near the heart, and the emotional relief of eliminating future mammograms and biopsies. A recurring theme was that each woman's situation is deeply personal and requires weighing medical guidance, individual risk factors, age, genetic mutations, psychological comfort, and quality of life considerations, with many members emphasizing the importance of self-advocacy while acknowledging that no surgical choice can guarantee the cancer won't return elsewhere in the body.

A MyBCTeam Member

Barbara, you have been through so much yet you continue to read and research and help us. Nor only are you brilliant and kind and wonderful but you are an incredibly special friend to all of us. Thank you for being you! You're special. Thank you! Have a beautiful day! How are the kitties you care for? You not only care for us but the furbabies as well. This is going to be a 10+ day!!!

December 28, 2024
A MyBCTeam Member

I had a DMX on the 19th of last month and it has been horrendous. However, I spent months and months weighing the decision with the best possible team of medical providers. With a cancer Grade of 3, an oncotype of 64, and the BRCA-2 mutation, it seemed the best of the prophylactic methods.
I am blessed in that insurance is covering reconstruction for me - I go in three days for my first fill.

Sending love to all of my warrior brethren. We are still alive, folx, and that makes today a win from the very start!!!

December 28, 2024
A MyBCTeam Member

When I had a mastectomy in 2019, I asked the surgeon about doing a double mastectomy. She told me that would not guarantee it would not recur. She said she would do it if that’s what I wanted but that recovery would take much longer and if it were to come back, it would come back on the same side as the mastectomy. I opted not to do it. In 2021, it came back on the chest wall, same side, just as she said. Having said that, we are all different and respond differently to surgery, recovery, treatment and dealing with recurrence 🙂

December 28, 2024
A MyBCTeam Member

Like everything else, it is a personal decision. After multiple biopsies, it was the route I chose to eliminate mammograms, biopsies and endless wait periods for test results and to avoid radiation since the tumor was directly over my heart and lungs. Just as everyone decides the treatment route( or no treatment) that works for them, the preferred surgical treatment is whatever the individual feels most comfortable with.

December 27, 2024
A MyBCTeam Member

I went to 2 different surgeons, and both felt like lumpectomy was the best course for me. So that is what I went with.

December 27, 2024

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A MyBCTeam Member asked a question 💭
Lansdowne, PA