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WHY
Do some women have side effects as soon as they begin versus women who don't get side effects for months or even a year or two later?

Does age/weight/ pre bone health make a difference? How does menopause fir in? A difficult or easy menopause?

When you look at the age many women start to have trouble with her knees its after Menopause. The ovaries stop making estrogen, but we know estrogen is stored in body fat so do overweight women benefit in bone health better than slim women… read more

April 16, 2024
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Answer Summary

Members openly shared their frustration and confusion about aromatase inhibitors, with side effects varying widely in type, severity, and... Read more

Members openly shared their frustration and confusion about aromatase inhibitors, with side effects varying widely in type, severity, and timing, from immediate joint pain and cognitive issues to delayed symptoms appearing months or even years into treatment. Several members described practical strategies that helped manage symptoms, including switching between different AI medications, regular exercise and walking, acupuncture light therapy, taking vitamin D with K2 for bone health, and in some cases reducing dosage or taking treatment breaks with their doctor's guidance. A recurring theme was the deep emotional toll of balancing quality of life against cancer recurrence fears, with many members questioning whether the severe side effects are worth the uncertain benefits, expressing anger at the lack of research into why women respond so differently, and feeling dismissed by oncologists who minimize their suffering.

A MyBCTeam Member

@A MyBCTeam Member

You need to take K2 with vitamin D to make the calcium go to your bones and not clog your bloodstream. The calcium tablets especially do this rather than natural calcium in your diet
which is safe.

But to get even the natural calcium to your bones, you need Vitamin D + vitamin K.
My medical oncologist even said to take both vitamin D + K2.

April 25, 2024
A MyBCTeam Member

I agree with everything you said
@A MyBCTeam Member and I always believed that. And thats one of the reasons I never liked doctors. Its not some big conspiracy how connected Big Pharma is to our health care system pushing drugs and protocols for treatments. Its a huge money-making business, the medical mafia. ❤️

April 23, 2024
A MyBCTeam Member

Oncologists do not have the cure. They have protocols established from studies with probable outcomes. One thing they do know is that death for everyone is inevitable. Patients are often treated like cookies all cut from the same dough, but we are not exactly the same and our bodies respond differently to known treatments.

Then too, there is the lurking question as to their primary interest. Do they truly care about their patients or do they prefer the lucrative benefits of being a drug pusher? Big pharma has been known to push the drugs they create purely for profit. Their “dealers” are handed irresistible incentives, OxyContin being one example where profit was the motive for prescribing it.

As to the estrogen blockers used, they stay in our system for as much as 10 years after stopping them. My cardiologist openly informed me that the Tamoxifen I took for less than 3 months would take 6 months to clear from my body. I have yet to hear from my oncology team that the physical damages I have incurred from estrogen blockers will never actually go away after stopping the meds. I found through my own research they will also stimulate other health issues after the fact.
So, why the secrecy?

Any oncologist that tells a patient it’s their way or the highway should be sent down that same road. Yes, we need a cure, but perhaps focusing on ridding the causes of cancer might be another approach for consideration. Meanwhile, we patients try to hear what our bodies actually need to get and stay healthy until it’s time to go.

April 23, 2024
A MyBCTeam Member

Barbara I will say that I switched to exemestane 5 days ago and don't have the terrible side effects that I did with anastrozole.

April 20, 2024
A MyBCTeam Member

Karen my side effects with Anastrozole didn't start until my 5th month and they were minor, now 7 months, they are becoming intolerable. I am glad Exemestane is okay for you. ❤️

April 20, 2024

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Detroit, MI