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A MyBCTeam Member asked a question 💭
Lansdowne, PA

Confusion about (Phone number can only be seen by MyBCTeam users) IU . The bottles also say 25 ,50, 125 mcg
What number of MCG's should we be taking?

February 18, 2024
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Answer Summary

Members shared extensive guidance on vitamin D3 dosing for those on aromatase inhibitors, with most taking between 2,000 and 5,000 IU daily... Read more

Members shared extensive guidance on vitamin D3 dosing for those on aromatase inhibitors, with most taking between 2,000 and 5,000 IU daily based on their doctors' recommendations and individual vitamin D hydroxy test results. Several members emphasized the critical importance of pairing vitamin D3 with vitamin K2 to ensure calcium is properly absorbed into bones rather than accumulating in the bloodstream, a detail many felt their oncologists failed to mention. A recurring theme was the tension between protecting bone health and avoiding serious side effects from bone infusions like Zometa and Prolia, with multiple members reporting devastating complications including jaw necrosis, dental problems, and neuropathy that persisted years after treatment, leading many to refuse further infusions and rely on high-dose vitamin D3 and K2 instead.

A MyBCTeam Member

I am learning to make sure my concerns are met and the doctor understands where I am coming when I have my appointments. I am also stage one but like you said cancers cancer. I am making sure I get a Dexa scan every six months even if I have to pay for it . My bones are worth the cost of the scan . You must feel like you can truly express your self and be heard or replace the doc

February 19, 2024
A MyBCTeam Member

I hear you...each of you.
I've said it before that finding a doctor, any doctor (Medical Oncologist, Radiation Oncologist, Breast Surgeon, etc.) is like "Speed Dating" your going to try out a few before you find the right one. You must be comfortable and trust the medical team individuals you trust your healthcare with.
History: OK, me 2021- IDC Stage 1C left breast. Lumpectomy with Radiation. OncoType DX Score was "0" so No Chemotherapy was recommended.
Follow-up:
1. Annual Mammogram- Breast tomosynthesis (3D mammography) This is a specific type of Mammogram not a normal mammogram. I have "Extremely Dense Breasts" which many of us have. This is a different process mammogram and reading. My Radiation Oncologist shared research information with me regarding doing 6 months vs. 1yr Mammograms and I chose to do the 1-year Mammograms based on the
2. DEXA Bone Density Scan- BEFORE you start Aromatase Inhibitor drugs and every 2 years. Typically, use the SAME scan machine to enable them to do comparison from scan to scan to determine changes. So, keep that in mind when scheduling your scans, etc. No Tums, Calcium, etc. prior to the scan.
3. Blood /Lab work: 1st year every 6 months, after that every year.
4. Vitamin D3 (dissolvable) 125 mcg (5,000IU) 1 tablet daily is what I do! Please note there is a difference between the various Vitamin D's.
mcg=micro grams
IU= International Units

I see the Medical Oncologist on an Annual basis and my Primary Care Physician on an Annual basis.

Thats what I can add to the discussion. Thanks

February 20, 2024 (edited)
A MyBCTeam Member

There was a woman here earlier @A MyBCTeam Member just starting out on an AI and I linked this post to her telling her to take D3/K2 but I am not sure if starting 5000 IU is good. Knowing how quickly the AI's can cause damage.... I encouraged her to keep her bones in good shape with D3/K2 and not the bone infusions. Women really need to know the dangers of bone infusions and injections, if they are women who tend to follow doctors orders or they just don't understand the forever effects of those drugs it really is up to us to educate those who don't know.

August 16, 2024 (edited)
A MyBCTeam Member

This might answer your question.

March 7, 2025
A MyBCTeam Member

Vitamin D is a cancer fighter.
A lot of women with BC have low vitamin D.

Make sure that you are taking 3,000 to 5,000 mg of vitamin D with permission of your doctors.

You need to add K2 to that so that the K2 combines with the vitamin D and picks up the natural calcium that you are eating in your diet and takes it to your bones instead of clogging up your bloodstream.

February 21, 2025

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