Ok ladies ... I need you to weigh in.
Has anyone out there taken Neratinib oral chemo? I have to make a decision soon. See details below.
I am in treatment for HER2+ breast cancer (invasive ductal) stage 2b/3. It was a large tumor and satellite tumor and was in some lymph nodes. I’ve had chemo/immunotherapy, bilateral mastectomy/reconstruction (removal of 6 nodes), radiation, and am currently receiving immunotherapy (I have 3 left to complete 12). All pathology and… read more
I am very familiar with nerlynx. I took it two different times. The first time I took 6 pills at once. I was told that is just how it is done. In about 2 weeks I was hospitalized for dehydration from diarrhea. I tried it again and am doing well on it. I am slightly weak and a little tired. The diarrhea is managable. The difference this time is, I started taking 1 pill for a week, then 2 pills the next week until I got to 6 pills. I also took budesonide, immodium and lomotil. I really think it depends on how this drug is administered!!! I have been on it since March.
I finished my year of neratinib in July. My biggest problem was diarrhea. I dealt with it and made it through. I could have taken more anti-diarrhea Meds along with it as recommended, but it constipated me. I opted to deal with the diarrhea. Your system may be different.
It actually wasn't terrible and I was willing to do anything for cancer not to show its ugly face again. I have dealt with it twice already.
Good luck !
Everyone is different, do what you feel best for you! 💞