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Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I was diagnosed with IDC, grade 2 in January of this year. I had a bilateral mastectomy with immediate reconstruction at the end of February, and still undergoing expansion. My final pathology showed one 2.1 cm tumor, one 1cm tumor and approximately a 5 cm mass of DCIS. I had 2 sentinel nodes removed and one showed a micrometastatis of less than 2mm. My case was reviewed by a multidisciplinary tumor board and radiation wasn't recommended, but the oncotype test was. My score was 23 and my… read more

April 6, 2017
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A MyBCTeam Member

I had an oncotype of only 5 but still decided on chemo. I ended up only having 3 chemo treatments because I had allergic reaction to taxotere. It is a very hard decision. I didn't want to have a recurrence and always wonder if I should have had chemo. I cannot say with certainty that it was the right decision but I think if I were faced with the decision again I would likely do the same thing.

One thing which tipped the scale for me was the long term recurrence risk. I think the oncotype report goes out either 5 or 10 years.

I went on a different site which seemed to indicate the risk of recurrence over a longer period was quite a bit lower with chemo than without.

April 7, 2017
A MyBCTeam Member

I had invasive lobular with an oncotype of 20 and chose to skip the chemo ( intermediate range) I also was not sure what to do about the 4 doses of chemo ! I decided for me it would not benefit me that much and am now on tamoxofien . I wish you well with your decision .🌷

April 7, 2017
A MyBCTeam Member

Thank you, ladies! I was really struggling with this and fortunately for me, a new test came available in the US recently, the Endopredict test, and my doctor has agreed to run it for me to help with a decision. We'll be the first in the area to request the test, so keeping my fingers crossed. The test is similar to the mamma print, I think, in that it will tell me whether I'm at a high or low risk of recurrence over the next 10 years. Black and white, which is what I need....no huge shades of gray!

April 12, 2017
A MyBCTeam Member

sea cucumber

April 14, 2017

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