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A MyBCTeam Member asked a question 💭
Frederic, WI

My oncologist recently took me off of Ibrance and anastrazole and I started monthly injections of Faslodex because my liver lesions are growing. Can anyone give advice or hope if they have a similar situation... am so scared that it will not work.

November 21, 2015 (edited)
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A MyBCTeam Member

Flaxy- This is my 4th time with the same cancerIDC estrogen positive. This time it had mets to my bones and lymphnodes and a tumor in my axilla which caused lymphedema and neuropathy in my arm. I was on armomasin and it worked for a yr. Then it stopped working last April and nothing that I have been on has really worked since then. I'm positive though that something else will work. I take comfort in the fact that I have a slow growing cancer according to my onco. I still feel fear and disappointment.I understand but feel it is too early to give up! Hugs

December 4, 2015
A MyBCTeam Member

Flaxy- I have many of the same feelings that you are experiencing. Xeloda worked for me for about 3 mo and now my tumor marker test is over 100[up from 88 last month. My onco said if the Xeloda stopps working he will put me on Ibrance/Letrozole. I'm getting very discouraged, but refuse to stop fighting. Every life is precious including yours. I have a feeling that you have many family members who love you! I fight for my grandchildren who are 14 and 12. We have a special bond and they need me now especially because their parents divorced this past year. What side effects did you have with Ibrance? I'm sending you hugs,Marty

December 4, 2015 (edited)
A MyBCTeam Member

I have a brand new liver lesion discovered next to tons of new bone mets. I am starting Xeloda tomorrow morning; Ibrance and Letrozole didn't work for me. I also get Zometa every month but that didn't really work either.I think they want to try Xgeva? I don't know I get so mixed up. Sometimes this all seems so pointless. I don't have children or a husband so this "fighting" thing is not something I owe to anybody. I feel awful that there are so many Stage IV girls out there this is so much bullshit. Merry Christmas everyone!

December 4, 2015 (edited)
A MyBCTeam Member

I've been on faslodex since February 2015 and while I haven't had a pet scan since then, my tumor markers drop monthly. I agree they hurt to get but I don't suffer any major side effects that I'm aware of. I'm also on xgeva

November 25, 2015 (edited)
A MyBCTeam Member

I have been on Faslodex for about a year now, I think, and I have had great results with it. My tumors have not spread and have not gotten any bigger. I am happy with that. I get scans every 3 months and we evaluate my treatment plan each time. My oncologist is wonderful.

November 24, 2015 (edited)

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