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A MyBCTeam Member asked a question 💭
Salt Point, NY
March 15, 2015
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A MyBCTeam Member

I had a lumpectomy and did radiation. I took tamoxifen for a year and half and stopped because the side effects were unbearable. My joints ached so much I had trouble walking and could not unbuckle my grandkids from their car seats due to wrist pain. I am now back to running 50 miles a week with no joint pain. Need to lose the 20 pounds I gained after I started taking the drug.

March 15, 2015
A MyBCTeam Member

I chose no harmone therapy. She wasn't happy but we couldn't come to any solid answers and proving evidence for me to take it.
I'm on a tight watch though and will have a full checkup imaging testing labs etc to check the effectiveness of my tx as my compromise.
I'm all for doing what your gut tells you (was told I didn't have bc over and over and it turned out invasive) but also make sure you stay with a team to make sure your moving into the healthy direction.
I can only tell you if it was the right choice after its all been behind me for longer. ❤️

February 15, 2016
A MyBCTeam Member

I was prescribed Evista instead of Tamoxifen, but have not taken it yet. I had two lumpectomies in January 2015 (could not get clean margins first time) and had brachytherapy (internal via a ballon). I am leaning toward not taking it. Very frustrated: my oncologist just says "it's up to you."

March 19, 2015
A MyBCTeam Member

Yes. I'm 12% er+. I wanted to do everything I could to prevent it from coming back. I did tamoxifen for 2 months. I ended up with a blood clot in my arm and right under my collar bone. So I tried zoladex and arimidex. I was passing out for a month and the bone pain was unbelievable. My husband and I decided against hormone therapy. I will be getting an extensive DMX instead.

July 16, 2017
A MyBCTeam Member

there are so many nasty side effects and am just not sure what I want to do...grrrrr!! Thanks for the in
put girls!

March 19, 2015

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