Hello.
I had DCIS stage 0 and 28 rounds of radiation but I opted out of tamoxifen. I remained cancer free for 15 years and the new diagnosis is not related nor the same.
May 18
That's a really important question, and it's one many people with DCIS wrestle with after completing surgery and radiation.
Hormone therapy (like tamoxifen) is typically offered after lumpectomy and radiation when a DCIS tumor is hormone receptor-positive (ER+ or PR+). It's not mandatory, and some people do choose to skip Show Full Answer
That's a really important question, and it's one many people with DCIS wrestle with after completing surgery and radiation.
Hormone therapy (like tamoxifen) is typically offered after lumpectomy and radiation when a DCIS tumor is hormone receptor-positive (ER+ or PR+). It's not mandatory, and some people do choose to skip it — but it's worth understanding the trade-offs. Here's what the research generally shows about recurrence risk after lumpectomy:
- Lumpectomy alone: roughly 25–30% chance of recurrence
- Lumpectomy + radiation: up to 15% chance of recurrence
- Adding hormone therapy can reduce that risk further, especially for hormone receptor-positive DCIS
High-grade DCIS also carries a higher recurrence risk than low-grade DCIS. Many MyBCTeam members have shared similar questions and experiences about weighing the benefits of hormone therapy against its side effects. It's a very personal decision.
The best step is to have an open conversation with your oncologist about your specific tumor grade, hormone receptor status, and personal risk tolerance before deciding. You deserve all the information to make the choice that's right for *you*.
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Ductal Carcinoma In Situ: Your Guide
May 18
I'm interested in reading the replies to this.
I had a lumpectomy and 5 radiation treatments. I'm currently taking Anastrozole and I'm having hot flashes and terrible insomnia. I've only been taking it for one month.
May 18
Wishing you the best of everything. Love and hugs!!! Love your pic!
May 20