Breast Cancer

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3 medium

What side effects do you have from Tamoxifin?

I went to my oncologist today because I've been having memory problems especially speech. I also have short term memory loss, ringing in my ears, dizziness and headaches. My oncologist said that tamoxifin does not cause any of that. I have an MRI because he suspects brain mets. He may be right, but have any of you experienced any of these things while on Tamoxifin?

posted 7 days ago
A MyBCTeam Member said:

No, not a broken record at all. You're just reminding all of us what we all need to be aware of. ;-))

edited, originally posted about 3 hours ago
6 medium

Chemo alternatives

Hi, I just got a call from my surgeon with oncotype score of 28. My oncologist had told me if it came back 25 or higher she would recommend chemotherapy. I know chemo saves lives, but I am terrified of it because I know it does a lot of damage in the meantime. I'm not saying I will refuse chemo, but just wondering if there is anyone out there who has heard of or used an alternative method to chemo. I have a double mastectomy coming up as well, another challenge that I am not looking forward… read more

edited, originally posted almost 3 years ago
A MyBCTeam Member said:

My best friend opted not to do chemo or radiation and it emphasized throughout her body and passed away on November 28th. Sh e lasted 4 years and the… read more

posted about 7 hours ago
1 medium

Looking for your stories on lumpectomy ot mastectomy?

I am just about finished my last chemo session. Yay! I will have surgery in about a month from now and still don't know if I will choose lumpectomy or mastectomy and would like to hear your stories. I am a perfect candidate for a lumpectomy as it seems the chemo has reduced the tumour to nothing. However I am nervous about local recurrence which is much lower with mastectomy. But I'm also nervous about mastectomy with reconstruction. Seems weird to have tissue… read more

posted 15 days ago
A MyBCTeam Member said:

When I had my implants 16 years ago they felt weird fir a while and moved a little. But after a while they felt completely normal. No one believed they… read more

posted 1 day ago
6 medium

Anyone experiencing memory loss with radiation and or Arimidex?

posted about 5 years ago
A MyBCTeam Member said:

Radiation no arimadex yes. Severe memory loss. No short term memory

posted 1 day ago
6 medium

Anyone on both Lexapro and Tamoxifen?

So I’m unclear....mixed opinions. I’ve been on Lexapro for anxiety since a July and just started taking Tamoxifen. My oncologist at MKS said there can be a very slight decrease in Tamoxifen effectiveness with Lexapro, but she is ok with it. She suggested Effexor instead, but will defer to a psychiatrist. My psychiatrist is hesitant to make the switch for a couple of reasons: 1) I am doing well on it 2) barely any reduced effectiveness 3) more difficult to get off Effexor and… read more

edited, originally posted 2 months ago
A MyBCTeam Member said:

I take CBD oil prescribed by a psychiatrist for anxiety. It’s also a anti inflammatory. Works great. No side effects.

posted 4 days ago
2 medium

Refusing Neulasta

Anyone refuse Neulasta? I'm halfway through four cycles of TC, and really thinking I don't want the Neulasta on the last two. It's the only thing making me feel bad - I'm sailing through otherwise. I know I run a higher risk of infection without it, but that risk is lower than the chances I'll have severe bone pain. And yes, I am taking Claritin. Wondering if anyone has gone without Neulasta. I don't want to delay any treatment for low counts, but this bone pain is awful. PS - it's even making… read more

posted about 1 month ago
A MyBCTeam Member said:

I had neulasta during mt AC infusions but not with the taxol and I was fine.I don't really think you should need it during the taxol.

posted 3 days ago
1 medium

Side effects of Taxol after AC chemo?

I am starting 12 weeks of Taxol after an 8 week round of AC chemo. I had 4 infusions in 8 weeks and was absolutely exhausted, nauseous, and experienced severe muscle and bone pain. I think the bone pain was due to the neulasta. My oncologist said Taxol would be much easier and I wanted to hear from any one else who had been through a similar course of treatment and how they fared. New to this site and appreciate the help!

posted 26 days ago
A MyBCTeam Member said:

I thought the 12 courses of weekly taxol was going to kill me toward the end but it could have been a cumination of 4 weeks of ac I had first along with… read more

posted 3 days ago
1 medium

Still Can't Decide - Lumpectomy vs. Mastectomy

Some of the discussions here date back a couple of years, so I thought I'd pose the question again. My surgery is 2/15. I have a 5-6 cm tumor in my right breast. I'm being told that the BS is 'comfortable doing either' surgery. The PS says I'm a 'perfect candidate for either'. He said I'd have great results either way. I already know I don't want a bilateral mastectomy. I go back and forth on the mastectomy or lumpectomy on the right. I am going to do reconstruction as… read more

posted 12 months ago
A MyBCTeam Member said:

I had an 7.7 cm tumor removed from my left breast...aggressive triple negative stage 1. I went back and forth on which way to go wanting them to be the… read more

posted 4 days ago
1 medium

Tissue Expanders "change shape" as they expand?

Did your Tissue Expanders "change shape" as they expand? Mine started symmetrical and so even. I have had 3 fills so far totally 380cc each side. One of my TE "Foobs" looks like a breast, well sort of, and the other is what I call my "man-pec". Then man-pec is on the same side as my port. I attributed this one being higher due to the port. My PS assured me nothing to worry about and when the implants are in, they will be reshaped and even. He explained that it the… read more

posted about 4 years ago
A MyBCTeam Member said:

Mine are changing shape all the time, left looks kind of normal the right looks like an alien is trying to get out lol! Glad you posted this and I’m… read more

posted 4 days ago
3 medium

4 Years Post Recon Loss of Mobility and Strength

I had a bilateral mastectomy and reconstruction in 2014. No chemo, no radiation and no meds with a diagnosis of DCIS. Everything went as planned but for the last two years, I've been on a physical downward spiral. Reconstruction is silicone implants under the muscle. I have lost a tremendous amount of strength, as there are many movements I can no longer do because the chest muscles pull tight across the implants causing them to feel displaced. In addition, I am… read more

posted about 2 months ago
A MyBCTeam Member said:

Kimmie_d....I will be undergoing reconstruction revision on January 31. The key for me was finding a PS that is invested in post BC innovation and best… read more

posted 5 days ago
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