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Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Nerlynx"

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Nerlynx
A MyBCTeam Member asked a question 💭

Has anyone taken Nerlnx after Herceptin ? If so how re the side effects?

A MyBCTeam Member

Good to know. Thank you for the insight.

Wondering If Anyone Has Taken The Drug Neratinib (Neralynx) Post Adjunct Chemo (TCHP/ Herceptin) For Stage 3 ER+ / HER2-positive(grade 3+ BC
A MyBCTeam Member asked a question 💭
A MyBCTeam Member

It is my understanding that any cancer cells remaining after surgery may develop resistance to the initial HER2-targeted treatment. Neratinib was developed to overcome this resistance by targeting the… read more

Did Anyone Continue Herceptin After Chemotherapy?
A MyBCTeam Member asked a question 💭

I'm in the whether I continue a few more rounds or not. I've had pathological response saying my HER2 positive cancer is gone. Asking you ladies for your opinion and or your results. Thank you for your assistance and time.

A MyBCTeam Member

I need some advice. I had lumpectomy all went well. Final pathology report said no invasive cancer just DCIS on superior margin which will be removed by re-excision. I am Estrogen + Progesterone +… read more

Recurrence????
A MyBCTeam Member asked a question 💭

Recurrence???? I know this is a fear for all of us that never goes to sleep.... just curious....
How many of you have had recurrence.... if so.... here’s my 4 questions:
1)what/when was your initial diagnosis/stage?
2)what was the initial surgery (@ lumpectomy @or @ mastectomy (single @or double),
3)What chemical treatment?chemo, radiation, @ tamoxifen etc?)
4) how long after @your initial diagnosis did the recurrence happen? And what stage were you then?

A MyBCTeam Member

on 1 Nov 22. Stage 1, Invasive ductal, Tumor was 17mm for initial. Bi-lateral, with -0-skin saving, -o- tats, -0-reconstruction. Flat! After surgery a sent. node bio. Tumor was 2.9mm, bc was in 2… read more

Anyone Raking Nerlynx Also On Budesonide To Help With Diarrhea?
A MyBCTeam Member asked a question 💭
A MyBCTeam Member

Scrap, how is your GI system doing now?

NERLYNX Percentage Of Recurrence Reduction
A MyBCTeam Member asked a question 💭

For anyone who has taken NERLYNX (following Herceptin and chemo) for early stage Her2 positive breast cancer, what has your oncologist told you as far as how much it reduces the future risk of recurrence? My doc said it was a very low percent, but then I see much higher percentages online and on the NERLYNX website. I'm going to discuss it again w/my onc, but I'm wondering what you girls have experienced. Thank you.

A MyBCTeam Member

Ok, thanks for clairfying. I wasn't BRACA. This is all JUST SO CONFUSING and overwhelming.

Anyone Here Taken Nerlynx?
A MyBCTeam Member asked a question 💭

For those that are early stage triple positive/Her2 positive, have any of you been through, taken, or still on Nerlynx (neratinib)? If yes, how was your experience and did you have any permanent liver damage?

Is Anyone On Tamoxifen?
A MyBCTeam Member asked a question 💭

Hello pink sisters! I’m getting really scared because I’m about to finish chemotherapy and now the next thing is tamoxifen. There are so many side effects I’m really nervous and there is also a risk of uterine cancer. Was thinking about a hysterectomy but need to do more research. I’m feeling overwhelmed been doing chemo since 2/2022 just want to be done already!! I’m feeling a little depressed and I’ve been so tired. Started with TCHP that was one rough ride! Then had surgery followed by… read more

A MyBCTeam Member

cancer is so awful.

Is Anyone Taking Nerlynx? What Is Your Experience With Diarrhea, A Very Common Side Effect?
A MyBCTeam Member asked a question 💭
A MyBCTeam Member

I would definitely take the anti diarrhea Meds along with it. I am taking about 1/2 pill daily to keep things under control. Some days I take nothing. Most times I'm good. My worst situation is when I… read more

Anyone Taking Nerlynx?
A MyBCTeam Member asked a question 💭

Hi. Anyone taking nerlynx? If so when you finished it after a year did your doctor prescribe you any other oral chemo? I had stage 3 breast cancer, chemo for 6 round changed from HER2 neg to positive and then 8 more chemo treatments and 30 radiation. Now taking nerlynx for 9 months. Scans clear but constantly worry about cancer coming back😢

A MyBCTeam Member

"Don't ever save anything for a special occasion. Being alive is a special occasion."

Hope this helps!