It feels like I am battling the worst pain every single day of my life. The joint-and muscle pain is killing me, my quality of life feels zero. I take NSAIDS, and some other anti-inflammatories as well. Even anti- depressives..... I am in constant pain. Being so stiff, so sore, moaning and groaning all the time. I can't do this any more. I am almost 18 months into the 5 year treatment, but I simply can't go on any longer. What will happen if I just… read more
I am so afraid of reacurrence. I feel one Day it’s going to come back. How does everyone cope?
I can’t watch animal videos, anything that is sentimental or inspiring. In the middle of the day I want to cry because I miss my Dad. Or, I miss the lady I used to work with and passed away shortly after her retirement. I am not a weepy person. Actually I am usually the strong one.
God help me when the holiday movies start or the Kleenex commercials begin. If you want to make some money, buy some stock in tissues. I’ll keep… read more
In October of 2016, I was diagnosed a second time, same breast and same general area as the first in 2002. This time I opted to have bilateral mastectomies w/ reconstruction. The implant became exposed on the right side less than a month post op so he had to replace it. Then the left implant became exposed about a month after that. Instead of putting another implant in, he decided to put "temporary"… read more
This may seem silly, but one of the biggest issues I am having is weight gain. Since my diagnosis about 2-1/2 years ago, I have put on approximately 25 pounds. This is really unusual for me, as other than pregnancy, my weight hasn’t really fluctuated much over the last 20 years. I have so little energy. Plus the constant pain from the Arimidex that I simply can’t exercise the way I used to either. Has anyone else experienced this side effect? Any advice? I keep having to clear out my closet
I've been on anastrozole for a few weeks now and I'm trying to figure out if my side effects are from this pill. I was starting to feel a little better after my radiation but then my oncologist added anastrozole to my treatment plus I'm getting a shot of Xgeva for my bones every other herceptin/perjeta chemo session. When I first started the pill I noticed the achy bones somewhat so started taking the 500 mg naproxen DR the… read more
Hi, I just got a call from my surgeon with oncotype score of 28. My oncologist had told me if it came back 25 or higher she would recommend chemotherapy. I know chemo saves lives, but I am terrified of it because I know it does a lot of damage in the meantime. I'm not saying I will refuse chemo, but just wondering if there is anyone out there who has heard of or used an alternative method to chemo. I have a double mastectomy coming up as well, another challenge that I am not looking forward… read more
I am 5 weeks post chemo and my ONC said I can have my port taken out. It is scheduled for March 14 th. I was kind of surprised they wouldn't want to keep it in longer. My port has always been very tender and it hurts like crazy when they access it. So I would rather do blood draws through my arm.
People keep questioning me for having reconstruction. They just keep saying as long as the cancer/ breasts are gone reconstruction is not important. I feel attacked by people and relatives judging me for having reconstruction. Has anyone else had the same experience?
My port goes in tomorrow. How does that impact sex? Do I need to keep it from being bumped? Strangely I can't find anything online about this.