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Oncologist said my body could not take it, so tx. was stopped, now in lymph glands, all kinds of reccomendations made, including the drug that almost took me out and they said I couldn't take. so confused and alone in all this. I have no family or friends left, hired help is so expensive, as is transportation. I have vision impaiment as well. Suggestions? Thank you all💖
wow, wado(thank you) that is big news.I will be sharing that widely! I have a great dog, she went through puppy obediene and waiting for her growth plates to close for completion of training. lost funding i thought was secured, beause she has to cross train for vision, mobility and balance i have to use a private trainer and am trying to refinance my mortgage.May you be well/ i'll be havig several surgeries soon and am barely over the poverty limit for medicaide.pay people to go get grceries, etc...I LOVE hearing from you!!💖
Hi Lorrie, I was just thinking of you last night! I had read an article this week about a genetic difference that has shown up in the DNA of women of Native American ancestry with bc, that differs from white women. Part of the issue in researching this is the limited number of patients involved in the studies, I think it was from Notre Dame, gonna check to see if I can find it- I do not recall it mentioning receptor status, so I will try to find.
I am so sorry to hear that HER2 has decided to circle back, especially since you already have enough health challenges going on. Were you able to make progress on getting another support/guide dog?
Keeping you in prayers! Please keep in touch! Hugs!
PS Found the article:
https://news.nd.edu/news/first-comprehensive-lo...
Hello @A MyBCTeam Member ...... I'm sorry to hear you are dealing with a recurrence to your lymph nodes. I don't know much about being HER2 positive, but I read your profile and it mentions you had a lumpectomy. Just a thought since you've been unable to take a couple of different drugs so far. Would it be possible to treat your recurrence with a mastectomy followed by radiation and maybe some kind of chemo? I agree with the AI response that a 2nd opinion would be worthwhile, especially if your current doctor is trying to put you back on a drug that was deemed hazardous for you to take. The AI also mentioned some other drugs that would be worth researching and then asking about at your second opinion appointment or your current doctor if you can't coordinate a 2nd opinion.
The American Cancer Society at www.cancer.org does offer a rides program if you live within 20 miles I believe of where you get your treatments They also offer other types of assistance. When I was getting radiation last year for a recurrence they covered cost for 12 days at a hotel near my hospital.
Wishing you all the best and hoping you can find a treatment and/or meds that your body can tolerate ❤️
Thanks so very much!!
@A MyBCTeam Member.
Here is a financial help list originally posted by @A MyBCTeam Member
SKnight52821 was having a good day 🙂
“Hello my sisters! As promised I am listing resources that my Medicare broker printed out to help with various medical costs and other needs... meds, co-pays, financial assistance, free counseling services, etc. (
1)- Cancer Financial Assistance Coalition (CFAC)- searchable database of national and regional organizations that provide financial assistance and other services for people with cancer.
(2) NeedyMeds- helps patients without prescription coverage by providing information about assistance programs for prescription medications at no cost. (
3) CancerCare (866-552-6729) for guidance re: co-pays, guidance and referrals for additional help. (
4) Patient Access Network (866-316-7263) assists patients who cannot access treatments they need because of out-of-pocket care costs like deductibles, co-pays and coinsurance.
(5) Patient Advocate Foundation (800-532-5274) offers a co-payments relief program and seeks to ensure patients access to care
.(6) Partnership for Prescription Assistance (888-477-2669) matches patients to programs offering free or low-cost prescription medications. Also, CancerCare professional oncology social workers can refer patients for financial assistance and to organizations that offer free counseling services. (
7) Komen Treatment Assistance Fund (877-465-6636) Service provides financial assistance/Grants medical expenses for low-income or uninsured breast cancer survivors.
(8) American Breast Cancer Foundation (ABCF) Breast cancer assistance program for screening, testing, financial assistance/grants (Phone number can only be seen by the question and answer creators) or 844-219-2223).
(9) Tennessee Breast Cancer Coalition(TBCC)- Emergency Access Fund (615-377-8777) Provides financial assistance/Grants for residents diagnosed with Breast cancer, undergoing treatment, and in financial need due to inability to work and/or mounting medical expenses, currently while undergoing treatment.
(10) Pfizer RxPathways (844-989-7284) Provides patient support assistance for medications made by Pfizer ex: Ibrance. I hope this information helps someone in need! I love my sisters! Take care!😁“
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