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I was diagnosed with Stage iv metastatic breast cancer, hormone positive in December 2024 & have been on treatment since January 2025 & I am having a horrible time with pain and lethargy. I was diagnosed with hypothyroidism in 2014 & recent bloodwork shows normal #'s. I was diagnosed with Post Covid Myalgia/Post Covid Syndrome in 2021. My oncologist said I would be back to normal after starting cancer treatment but that isn't my case. Just wondering if anyone is in the same boat with these… read more

7 days ago
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A MyBCTeam Member

As always, clear that you can take with any meds.
We need to do this ourselves plus working with our doctors.

6 days ago
A MyBCTeam Member

If you have long covid look into Dr. Peter A. McCullough a Texas cardiologist who became one of the most prominent physician critics of long covid and the COVID-19 vaccines.

Dr McCullough recommends "Base Spike Detox":
his core regimen is three over-the-counter enzymes/compounds he says degrade spike protein:
Nattokinase 2000 FU (100 mg) twice daily, empty stomach
Bromelain 500 mg once daily, empty stomach
Nano/liposomal curcumin 500 mg twice daily, with food
He recommends 3 months minimum, often 6–12 months.

7 days ago (edited)
MyBCTeam

What a lot to be managing all at once β€” and it makes complete sense that you're struggling. Dealing with metastatic breast cancer, its treatments, and other conditions simultaneously can make symptoms like pain and fatigue feel overwhelming and hard to untangle.

The honest truth is that fatigue and pain with Stage IV Show Full Answer

What a lot to be managing all at once β€” and it makes complete sense that you're struggling. Dealing with metastatic breast cancer, its treatments, and other conditions simultaneously can make symptoms like pain and fatigue feel overwhelming and hard to untangle.

The honest truth is that fatigue and pain with Stage IV metastatic breast cancer are incredibly common, and can come from several overlapping sources:

- Cancer-related fatigue is different from regular tiredness β€” rest doesn't always fix it
- Hormone-positive breast cancer treatments can cause body aches and fatigue
- Elacestrant (Orserdu/Inluriyo) is relatively newer, and your body may still be adjusting after only 2 months
- An ESR1 mutation means your cancer had progressed, which itself can cause symptoms Many MyBCTeam members describe exactly this kind of exhaustion. One MyBCTeam member shared, "The fatigue is horrible for me," while managing bone metastasis alongside treatment.

It's really worth going back to your oncologist and being very direct that things are not improving as expected. You deserve a proper pain and fatigue management plan. Asking for a referral to a palliative care specialist (they focus on quality of life, not end-of-life) could also make a real difference.

You are absolutely not alone in this. πŸ’™

7 days ago
A MyBCTeam Member

Yes, always clear with doctor when taking any supplements or repurpose drugs ❀️

6 days ago (edited)
A MyBCTeam Member

Great info. Thank you!

7 days ago

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