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I’ve been using corticosteroids for pain or allergies (like Flonase and prednisone) as part of my treatment, and neither my oncologists nor my PCP ever mentioned this risk to me.

September 11
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A MyBCTeam Member

This is concerning to me as well because I start Tamoxifen on Monday and I use nasal spray and an inhaler daily to manage my asthma. I have whiplash from the continual new information I find out on by BC journey that I need to be aware of or research or ask questions about.

September 12
A MyBCTeam Member

It's unfortunately very common for doctors to tell you about very few drug side effects, typically the most common ones if that even.

I've learned it's important to research everything and learn as much as I can about my cancers, the drugs I am prescribed, and the treatments that are recommended. By learning and becoming well informed it gives you the knowledge necessary to intelligently advocate for yourself, ask questions, and point out mistakes being made in your care by various medical providers. Doctors and medical providers are only human and they can and do make mistakes more often than most patients realize. Being well versed in all aspects of your cancer care and other health issues can literally save your life. I know it has saved mine on multiple occasions.

The website drugs.com is easy to use and details various side effects and other information about medications pretty well. It's my go to whenever I'm prescribed a new medication.

September 11
MyBCTeam

That's a really frustrating experience, and you're not alone in feeling like important side effect information slipped through the cracks. It's a fair question to raise with your care team.

Corticosteroids like prednisone are commonly used in breast cancer treatment to help manage side effects like nausea, vomiting, and Show Full Answer

That's a really frustrating experience, and you're not alone in feeling like important side effect information slipped through the cracks. It's a fair question to raise with your care team.

Corticosteroids like prednisone are commonly used in breast cancer treatment to help manage side effects like nausea, vomiting, and fatigue. However, long-term or high-dose use can come with risks that don't always get discussed upfront.

Here are some things worth knowing:

- Long-term corticosteroid use is associated with an increased risk of cataracts
- Tamoxifen, a hormonal therapy used for breast cancer, has also been linked to eye and retinal changes
- Some breast cancer drugs can affect vision or eye health in various ways

It's a good idea to bring this up directly with both your oncologist and PCP. Some questions to ask:

- Should you be getting regular eye exams given your current medications?
- Are there lower-risk alternatives for managing your pain or allergies?
- What symptoms should prompt you to seek eye care sooner?

Doctors manage a lot of information and sometimes side effect conversations get prioritized around the most immediate risks. That doesn't make it okay — but advocating for yourself by asking these questions directly is absolutely the right move.

September 11

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Harrisburg, PA