Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyBCTeam Member asked a question 💭
Northeast Harbor, ME
September 6
 · 
Be the first to react
A MyBCTeam Member

Hi, have you already had chemo? My chemo cocktail was TCH (Taxotere, Carboplatin, Herceptin) and then once those 6 sessions, scheduled at 3 weeks apart, were finished- I moved to Herceptin only. Because the Herceptin was already part of my chemo- there were no additional side effects, and the ones brought on by the other drugs began to diminish. The side effects that lingered the longest were the neuropathy (I blame the oncologist- he never discussed using cooling mitts and booties, and never considered lowering the dosage), and fatigue. However, the taste buds started working again, the nose bleeds stopped, and a few months after stopping chemo, the hair started returning from its vacation!

Wishing you all the best as you take on your new protocols! Hugs!

September 6
A MyBCTeam Member

No, I used the baking soda mouth wash recipe, throughout the day. I would make it up in the morning, and kept the bottle in the bathroom, where I would swish and spit every time I made a visit! That was more often than the few times they suggested- but since there was nothing in it that was harmful- why not! Hope you are able to avoid the mouth sores as well. However, it they have already hit- you can ask about the Rx mouthwash "Magic Mouthwash". Several members here have tried it with really good results! Hugs!

September 9
A MyBCTeam Member

Hi Virginia. Did you have mouth sores from chemo?

September 9
MyBCTeam

It sounds like you're curious about how others are managing on Herceptin (trastuzumab) and Perjeta (pertuzumab)! These are two targeted therapies commonly used together for HER2-positive breast cancer.

Members of MyBCTeam have shared a range of experiences, including:

- Feeling whole-body numbness, aching, and weakness
- Show Full Answer

It sounds like you're curious about how others are managing on Herceptin (trastuzumab) and Perjeta (pertuzumab)! These are two targeted therapies commonly used together for HER2-positive breast cancer.

Members of MyBCTeam have shared a range of experiences, including:

- Feeling whole-body numbness, aching, and weakness
- Unusual sensations described as "animals scurrying up and down veins"
- Difficulty bouncing back after infusions
- Reduced quality of life on treatment days One important thing to be aware of is that Herceptin can affect heart health. Regular heart monitoring is strongly recommended while on this treatment. Some MyBCTeam members have experienced heart-related complications that required adjustments to their treatment plan.

If anything feels off, it's always worth talking to your oncology team. They can help weigh the benefits against any side effects and adjust your care if needed. How are you feeling on it so far?

September 6

Related Questions

View All
A MyBCTeam Member asked a question 💭
Antrim, NH