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I know I will be having a double mastectomy, but I have no idea how I want to proceed; I don't think I want implants, I don't know if I want just a flat chest with no nipples, and I don't know if doing the "use tummy tissue to make breasts" is a great idea because it's a lot more surgery. Does anyone have any experience they can share?

August 11
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A MyBCTeam Member

The important thing is to get rid of the cancer, so if you haven't figured out what you want to do reconstruction wise then go ahead and get your mastectomy done and have the reconstruction surgery later. If you go this route just be aware that if you require radiation and you have that done prior to your reconstructive surgery you may not be able to have implants installed. This is because your skin can lose elasticity after radiation and not stretch enough to accommodate an implant. If you go through that scenario then you would need to have some sort of flap surgery in order to have reconstruction.

As far as medication allergies go, I am quite familiar. A couple years ago my doctor congratulated me when I reached the point of having 50 medications I am allergic to listed on my chart. I am allergic to most pain medications as well. For me I can take three different pain medications. The first is called hydromorphone otherwise known as Dilaudid, the second is Demerol, and the third is Fentanyl. Be sure to let your doctors, anesthesiologist, and nurses know what pain medicines and other medications you are allergic to. If you are aware of any pain medications you can take without an allergic reaction you should give them that information as well. There are enough pain medications out there that they should be able to find at least one that you can tolerate. You may also experience muscle spasms so ask the doctor to give you a prescription for muscle relaxers. You might want to have some nausea medicine because sometimes you can be nauseous after surgery or nauseous from pain. If you get backed up from pain medications then you should also have some sort of laxative on hand like colace. Good luck with your surgery ❀️

August 11
A MyBCTeam Member

Hi Joanne- I had the single mastectomy, aesthetic flat closure (no plan for reconstruction). While I had an Rx for pain, I found the Extra Strength Tylenol worked just as well. I did keep ice packs handy for those times when I fell asleep and the Tylenol wore off- the ice pack ( on and off a few seconds at a time) was a great time way to bridge that time gap until the next dose kicked in. Honestly, the incision for removing the lymph nodes was the more uncomfortable of the two! They cut through so many nerves during the mastectomy that a lot of those pain messages just don't make it to the brain.

Since I did the single, I just pop a prosthetic in the bra and roll on with my life! Keeping you in prayers as you consider all the information and your emotions to make the decisions that are right for you! Hugs!

August 11
MyBCTeam

It's completely understandable to feel scared β€” a double mastectomy is a big deal, and having drug allergies on top of that adds another layer of worry. The good news is that your surgical team can work with your allergy history to find safe pain management alternatives, so make sure they know every drug you react to before Show Full Answer

It's completely understandable to feel scared β€” a double mastectomy is a big deal, and having drug allergies on top of that adds another layer of worry. The good news is that your surgical team can work with your allergy history to find safe pain management alternatives, so make sure they know every drug you react to before surgery.

Regarding reconstruction, there's no single "right" answer β€” it truly comes down to what feels right for you. Here's a quick breakdown of the main paths people take:

- Going flat β€” No implants, no reconstruction. Many people find this liberating and love not needing future surgeries
- Implants β€” A common option, but comes with risks like infection, scarring, and loss of sensation
- Tissue-based reconstruction (like TRAM/DIEP flap) β€” Uses your own body tissue but is a significantly longer and more complex surgery A MyBCTeam member who chose to go flat said it felt "liberating, easy, and no more surgeries" β€” and they were extremely happy with that decision.

Another important thing to know: combining reconstruction with your mastectomy in one surgery may actually reduce overall recovery time and cost compared to doing them separately. That's worth discussing with your surgeon.

Whatever you decide, talking openly with your oncology and surgical team about your fears, allergies, and preferences is the most important step you can take right now. You deserve a plan that feels right for *you*.

August 11

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