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A MyBCTeam Member asked a question 💭
Rochester, NY

Background/aim: Drug repurposing offers a pathway to identify accessible, low-toxicity cancer therapies. Ivermectin and mebendazole demonstrate multi-target anticancer activity in preclinical models. This study evaluates real-world patient-reported outcomes, safety, and adherence in patients with cancer using this combination.

Patients and methods: We analyzed a prospective observational cohort of 197 patients with cancer prescribed ivermectin and mebendazole off-label via a U.S. telemedicine… read more

June 15
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Answer Summary

Members discussed a PubMed observational study on ivermectin and mebendazole as repurposed cancer drugs, with several sharing personal... Read more

Members discussed a PubMed observational study on ivermectin and mebendazole as repurposed cancer drugs, with several sharing personal experiences using these alongside supplements like Turkey Tail mushroom, often outside standard oncology care. A recurring theme was the tension between self-advocacy and pushback from oncologists, with some members reporting encouraging tumor markers and even NED status after choosing alternative or complementary paths. Members also raised practical concerns about transitioning out of oncology care at the five-year mark and the importance of understanding office policies early.

A MyBCTeam Member

Natera test is negative. Praise the Lord!

June 16
A MyBCTeam Member

There are some great comments on this. Those who do their own research and take responsibility for their own path are rare. Those who haven't experienced what it takes to push back against the comfortable, easiest-to-follow pathway. Sounds easy, it is not. It is scary, actually.

I support your decision, no matter what that is. We own our bodies.

June 16
A MyBCTeam Member

@AnnaTuckman

It is a study, not a trial.
So, perhaps the information which was not as exacting as a trial study and not completely defined led some medical groups to decide to do a trial to see if there was any promise or possibilities in its use.

June 15
A MyBCTeam Member

Thank you Sue10 for much information. Kellene I agree there is medical neglect and tyranny. AlitaVanDolahWhite I often wander why advancement in treatment plans aren't keeping up. Great advice and information and as KarenFischbeck always be your own advocate.

June 15
A MyBCTeam Member

I had the same low to no natural estrogen production. I was told I needed the AI’s because the body needs estrogen to function properly so it will generate fat in order to get it. Thus, the weight gain, not withstanding that being a side effect of the RX’s as well.

I felt like I was just being given the run around, especially when I suggested lowering the dosage as my body doesn’t usually need higher doses of most medications, and I do not carry the BRCA gene. Nope…didn’t happen so, I made a choice of quality of life over quantity after 3 years of misery and having my body falling apart because of the treatment regime. Within in a week or so I felt my body saying, Thank you”….

I understand it takes time to get study results, but with so much technology and gained knowledge I do not understand why advancement in treatment plans are not keeping up with other discoveries.

June 15

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A MyBCTeam Member asked a question 💭
Prescott, AZ