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Stage 2, grade 2, non nipple sparing. I had 3 tumors. The surgeries and expansions were very painful but since the first surgery, I'm suffering with allodynia (fire burning sensation if anything touches my skin. Just wanted to know if anyone has dealt with a simular situation. Thank you, wishing peace, health and strength to allπŸ™β€οΈ

May 29
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MyBCTeam

What a journey you've been through β€” and what a beautiful way to close your message. That warmth clearly says a lot about you. πŸ’›

You are absolutely not alone in this. The burning and hypersensitivity you're experiencing is closely related to something called post-mastectomy pain syndrome (PMPS), where nerve pain lingers Show Full Answer

What a journey you've been through β€” and what a beautiful way to close your message. That warmth clearly says a lot about you. πŸ’›

You are absolutely not alone in this. The burning and hypersensitivity you're experiencing is closely related to something called post-mastectomy pain syndrome (PMPS), where nerve pain lingers after surgery. It's more common than many people realize. Many MyBCTeam members have described very similar sensations after mastectomy and reconstruction, including:

- Intense burning feelings in the chest area
- Deep itching or poking sensations they couldn't reach
- Sharp, sudden pains that gradually improved over time

One MyBCTeam member shared that burning and twinges were worst in the first two months, but that feeling slowly started to return and improve. It's really important to talk to your doctor about your allodynia specifically. There are options that may help, including:

- Nerve blocks to identify and address nerve pain
- Medications for long-term nerve pain management
- Physical therapy

Please don't wait for your next scheduled appointment if the pain feels unmanageable β€” reach out to your care team sooner. You deserve relief. πŸ™

May 29

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Milwaukee, WI