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A MyBCTeam Member asked a question 💭
Greensboro, NC
January 5
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A MyBCTeam Member

I've had chemotherapy twice now. The first time I developed neuropathy in my toes, feet, fingers, and hands. The neuropathy progressively grew worse after each chemo session. Over the course of a year after my first round of chemo the neuropathy became less severe, but didn't come close to going away entirely. I'd say the neuropathy had about a 20% reduction in severity overall during the first year post chemo and there was no additional improvement afterwards.

I had chemo for the second time around last year. With each chemo session my pre-existing neuropathy grew worse during my second round of chemo. Typically about a week after each chemo session I would notice an increase in severity of the neuropathy. I am now about 6 months post chemo and have had no improvement. The neuropathy is just as bad as it was about a week after my last chemo session in early July.

January 5
A MyBCTeam Member

I experienced neuropathy after chemo despite having "frozen" my feet during treatment. My Dr put me on Gabapentin but it didn't help. She is having me take B12 supplements. I can't say that it is helping, but there is no harm in continuing. Luckily, my neuropathy ( in my feet) is not severe, only occasionally annoying, so I can live with it until it slowly ( and hopefully) subsides. I am 6 months past my chemo and still undergoing immunotherapy. I started my endocrine therapy 3 months ago with no side effects.

January 5
A MyBCTeam Member

Helpful. Thank you. I am just 3 months past the end of chemo. Following that has been immunotherapy (Herceptin) and I have read that it, too, can stir up neuropathy.

January 5
A MyBCTeam Member

Thanks all! I had forgotten about the Herceptin also causing neuropathy. I just finished my last infusion Dec 22nd, so I guess I have a ways to go. I am taking B12 in the sublingual form which is supposed to be better absorbed. Like Dede I don't know if it's helping. I also rub my feet with a magnesium cream. I feels good to rub my feet, but again can't say it helps. My oncologist did prescribe Gabapentin and I take it only at night. 16 yrs ago I hurt my back severely enough to cause nerve damage in my right leg. It caused neuropathy in my foot. It had slowly cleared up over the years, but now it's been reignited by the treatments! Both my feet and hands now have tingling sensation all day. And to add insult to injury the Anastozole I started 2 months ago seems to taken every ache and pain I have and intensified them!

January 6
A MyBCTeam Member

Hi Susan, my diagnosis was HER2+, and the chemo did cause neuropathy in my hands and feet- and I was devastated six months after chemo ended to be told- well- it's been 6 months so this is your new normal. What the oncologist forgot to take into consideration is that for us HER2+ gals, the targeted drug Herceptin- also has a side effect of neuropathy. I did not start feeling improvement until 6 months after the end of the Herceptin protocols. It did clear up- well, most of it anyway- I do still have some numbness in the tips of my fingers and toes- but it is more of an annoyance than anything- I will take the numbness over the pain!! Hopefully you used the mitts and booties during chemo (something else the oncologist never mentioned!) so that your healing can start from a less intense spot! Hugs!

January 5

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