Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Triple neg bc after 22 years cancer free

December 30, 2025
 · 
Reactions
A MyBCTeam Member

Hi Jaclyn. When I was diagnosed with breast cancer the first time I didn't have the option of a lumpectomy due to 3 tumors located in 3 of the 4 different breast quadrants. My doctor suggested a single mastectomy. I told my doctor that my mom was diagnosed with stage 4 breast cancer and had died. As a result of what my mom went through and because I was much younger than my mom was at diagnosis in my mind the only suitable option for me was a double mastectomy to increase my overall survival odds and decrease my chances of the cancer returning. Despite the double mastectomy the breast cancer did come back for round 2 last year which was 7.5 years after the first time, but I'm still glad I opted for the double mastectomy on the first go round because I know it saved me a lot of worry and stress. Good luck to you with whatever option you decide on ❤️

December 30, 2025
A MyBCTeam Member

Jaclyn, I also opted for the single mastectomy, and aesthetic flat closure. My tumor was Grade 3 (aggressive) and on the left side. I already have a heart murmer, and an extensive family history of heart problems. Being HER2+ my drug protocols already included a year of Herceptin, which has a common side effect of heart and/or lung complications. To do the lumpectomy- or to save tissue for reconstruction would mean radiation- and again, possible heart/lung issues. So, my choice allowed me to skip radiation and minimize the heart risks. I am totally ok with the unicorn life! I just pop the prosthetic in the bra and roll on with my life. I considered a bilateral- but did not see the point in additional surgery, scarring, possible complications (infections, etc) to remove a healthy breast. I am now 7 years since the surgery, so far, so good- my only regret is that women still have to make these decisions. My best advice- is to take in all the information- then give yourself some quiet time to listen to your inner voice. If ever there is a time for You Do You! this is it. If you are still conflicted- seek a second opinion. You deserve to have as much peace of mind as possible regarding your path forward! Hugs!

December 30, 2025
A MyBCTeam Member

I was offered mastectomy left breast and reconstruction to achieve size and lift and reconstruction to eight breast to "even them out and lift them both".

I am 62 years old. I won't get into my addiction to pain killers from when I broke my neck in 2010, but let's just say I got caught up with a really greedy, terrible doctor and ended up right smack dab in the middle of the opiate epidemic. And so from 2010 until September of 2021 I was given the quantity of painkillers and whatever I asked for. I was in lala land for most of my 50's.

Fentanyl hit the streets, was being mixed with oxycodone and people began to die. My Dr. was arrested and is serving his time, but left me with no resources. The withdrawl and the addiction, along with all my pain was making me suicidal. I began to buy pills from the streets. And of course, a friend brought over my meds I was doing broke buying, and took one himself. He stood up, swallowed the pill and never got a chance to sit down. He passed away immediately .
I checked myself into rehab the following day, telling myself I would not allow him to die without purpose. That was Sept 24th, 2021.

I decided on the lumpectomy only because I was so damn afraid of the pain any of the surgeries would cause, I was honest with my wonderful Dr. I explained that I no longer was concerned about their being lopsided, and didn't care what anyone else thought either. A double mastectomy was opening a healthy breast for me to endure more pain. I was so afraid. My pain management team were understanding, wonderful, non judgemental, and beat of all, understood my paranoia.

I am 2 months post surgery. There was a delay in my radiation. I'll be finishing up soon. And then we shall see. If I do have to get àn eventually mastectomy, I will 100% have both taken.

Side note: My Mom passed away @ the age of 59. From ovarian cancer. Her mother (my grandmother) was diagnosed when she was in her 50s but had surgery, chemo, and never alone if it again. 2 if my grandmother's sisters also were diagnosed with ovarian cancer young. They too survived. I do NOT have the gene. Go figure.

PS: God bless and good luck. Keep me posted!

December 30, 2025
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >
A MyBCTeam Member

Also no reconstruction for me

December 30, 2025
MyBCTeam

What factors should you consider when deciding between bilateral mastectomy versus removing just the affected breast?

This is a deeply personal decision, and there are several important factors to weigh:

Risk Considerations
A bilateral mastectomy removes both breasts, which can reduce your risk of developing cancer in Show Full Answer

What factors should you consider when deciding between bilateral mastectomy versus removing just the affected breast?

This is a deeply personal decision, and there are several important factors to weigh:

Risk Considerations:
A bilateral mastectomy removes both breasts, which can reduce your risk of developing cancer in the unaffected breast. However, after a single mastectomy, there's still a chance of getting breast cancer in the other breast. About 5 out of 100 women experience cancer returning to the chest area within 10 years.

When Bilateral Mastectomy May Be Considered:
Some people choose bilateral mastectomy if they have:
* A strong family history of breast cancer
* Genetic mutations like BRCA1 or BRCA2
* A preference for more peace of mind about future risk

Appearance and Reconstruction:
With a single mastectomy, some people choose to reconstruct both breasts for symmetry (called symmetrization). Others are comfortable with reconstruction on one side or choose not to reconstruct at all.

A MyBCTeam member shared: "I can't explain it, but I do feel a different confidence now that I've had reconstruction."

Important to Know:
Your personal preferences matter greatly in this decision. Your oncology team can help guide you based on your specific situation, including your triple negative diagnosis and 22-year cancer-free history.

December 30, 2025

Related Questions

View All
A MyBCTeam Member asked a question 💭
Omaha, NE